Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > News and Events
Register FAQ Search Today's Posts Mark Forums Read

News and Events News related to bone marrow failure diseases

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Oct 12, 2012, 09:24 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Anyone going to Chicago AA&MDS conference?

Anyone going to the Oct 20th conference in Chicago? Got my reservations.
Looking forward to learning more about AA and MDS.
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote
  #2  
Old Sun Oct 14, 2012, 11:53 AM
kris kris is offline
Member
 
Join Date: Feb 2010
Location: AL
Posts: 50
This is a very good support opportunity. Rick and I attended the one in Atlanta. it give you hope. Go and get all the information you can.
__________________
Kris, wife of Rick. DX; MDS/ Ringed Siderblast 5/2006. Supportive care, then Vidaza x 25 mo. HSCT 11//1/11 doing GREAT!
Reply With Quote
  #3  
Old Fri Oct 19, 2012, 01:19 PM
adjbrown68 adjbrown68 is offline
Member
 
Join Date: Sep 2012
Location: Indianapolis, IN
Posts: 1
This is my first post to the group. I have been so overwhelmed with everything surrounding my diagnosis, that I've just been a lurker. My husband and I are attending the conference. We'll be leaving in a few hours. Maybe we'll run in to you there. Best, Angela (44, Diagnosed with MDS in October 2010

Last edited by adjbrown68 : Fri Oct 19, 2012 at 01:20 PM. Reason: left off name
Reply With Quote
  #4  
Old Sun Oct 28, 2012, 05:16 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Conference Wow

The conference was outstanding. I would recommend it to everyone. I learned so much. I met so many great people. On my return home I felt so much better about myself and my MDS challenge.

In summary, if you can make it to a conference, you should go.
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote
  #5  
Old Sun Oct 28, 2012, 05:18 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Smile Conference Contacts

Meeting others was probably the best part of the conference.
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote
  #6  
Old Fri Nov 16, 2012, 06:12 AM
Kabir A Kabir A is offline
Member
 
Join Date: Nov 2012
Posts: 1
Quote:
Originally Posted by cdseibold View Post
The conference was outstanding. I would recommend it to everyone. I learned so much. I met so many great people. On my return home I felt so much better about myself and my MDS challenge.

In summary, if you can make it to a conference, you should go.
I am disappointed I missed this conference, as I have been hearing really good things about it. I just was not able to get it together enough to book Chicago Hotels at such late notice. It sounds like a really positive experience. Are there any other good conferences that I can attend? Any information would be greatly appreciated. Thanks!

Last edited by Kabir A : Mon Nov 26, 2012 at 12:16 PM.
Reply With Quote
  #7  
Old Fri Nov 16, 2012, 01:28 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Quote:
Originally Posted by Kabir A View Post
I am disappointed I missed this conference, as I have been hearing really good things about it. It sounds like a really positive experience. Are there any other good conferences that I can attend? Any information would be greatly appreciated. Thanks!
The AA&MDSIF and the MDS Foundation have both announced the cities but not the dates for their 2013 patient and family conferences.

The AA&MDSIF conferences will be in Phoenix, Cleveland, Houston, Boston, Tampa, and San Francisco. Here is the list.

The MDS Foundation conferences in the U.S. will be in Gainesville, Chicago, Philadelphia, Atlanta, Buffalo, Ann Arbor, Portland, San Diego, Indianapolis, and Long Island New York. Here is the list, which also includes a conference in Berlin on May 11, 2013.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
One-day Patient Conference in San Antonio, Texas, October 8, 2016 Marrowforums News and Events 2 Mon Sep 19, 2016 03:53 PM
One-day Patient Conference in San Diego, California, September 17, 2016 Marrowforums News and Events 1 Thu Sep 15, 2016 01:49 AM
One-day Patient Conference in Chicago Illinois, October 24, 2015 Marrowforums News and Events 0 Fri Mar 6, 2015 01:41 PM
One-day Patient Conference in Chicago, IL, October 20, 2012 Marrowforums News and Events 0 Sun Jan 29, 2012 02:58 PM
AA&MDSIF 2010 Patient & Family Conference Marrowforums News and Events 18 Mon Jul 19, 2010 11:47 AM


All times are GMT -4. The time now is 10:35 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org