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#1
Thu Dec 13, 2012, 09:15 AM
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I'm an AAMDS "Story of Hope"!
I don't know how many of you noticed, or made the connection, but I was featured in the December AAMDS newsletter as a "Story of Hope".
You can read it here I never quite got around to writing a succinct version of my story here for everyone, so it's nice to have a version of it written out if people don't want to wade through my super-long, play-by-play account in the Transplants forum!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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#2
Thu Dec 13, 2012, 12:22 PM
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Congratulations, Melissa.
Your story definitely belongs among the Stories of Hope, to inform and inspire other patients, even although it had to omit so many details to turn years of ups and downs into a handful of paragraphs. I'm surprised they didn't choose a finish-line photo.
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#3
Thu Dec 13, 2012, 01:18 PM
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Quote:
 I've got a few photos from the Amsterdam marathon here if you'd like to see, though. I'm too cheap to spend the €€€€€ for the official race photos and videos so you'll have to trust me that I managed a sprint finish! And besides, my friends' photos from Km 26 and from the after party were much nicer anyway!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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#4
Mon Dec 17, 2012, 02:09 PM
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Congratulations, Melissa! Yours is a story to inspire hope in anyone, anywhere!
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#5
Mon Dec 17, 2012, 04:00 PM
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Hope
A wonderful story Melissa!
Kind regards Birgitta-A
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