Home         Forums  

Go Back   Marrowforums > Treatments > Transplants
Register FAQ Search Today's Posts Mark Forums Read

Transplants Bone marrow and stem cell transplantation

Reply
 
Thread Tools Search this Thread
  #1  
Old Sat Jan 5, 2013, 10:06 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
Day 28 new development..

Well on Day 28 I have either developed GVHD or an adverse reaction to Bactrum (probably misspelled)... They tested it and that was what the dermatology report said.. I thought that was sort of funny.. Flip a coin it could be either... So now I am taking a different drug and a zpack of steroids to cover both possibilities. The Dr. gave me a speech about there being up's and downs and I thought if this itchy rash on my torso is as the worst it gets I am great with that.. On day 31 they are taking out my central line. My last blood count had my Hgbl at 12.4 and my ANC at 4.2 so I am still saying awesome...
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
  #2  
Old Sun Jan 6, 2013, 12:54 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Cam,

I hope the rash as a reaction to the bactrim, since switching antibiotics may be all it takes. Nobody wants GVHD of the skin, but ironically GVHD is one of the signs that a transplant is working, because it shows that your new immune system is recognizing what it considers foreign invaders -- your own body!

Let's hope this is only a small dip on the rollercoaster ride.
Reply With Quote
  #3  
Old Sun Jan 6, 2013, 12:58 PM
squirrellypoo squirrellypoo is offline
Member
 
Join Date: Nov 2008
Location: London, UK
Posts: 458
Yeah, don't get too concerned even if it is GVHD - acute GVHD right after transplant is pretty easy to fix. I had some awful hives about a month after transplant that was confirmed as GVHD, and that was cleared up after a week or two with topical steroids. To date, that's still the only GVHD I've ever had, so don't take this as any indication you're going to be stuck with it forever!
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
Reply With Quote
  #4  
Old Sun Jan 6, 2013, 06:50 PM
dpmeeks dpmeeks is offline
Member
 
Join Date: Dec 2012
Posts: 22
Cam congrats on you doing so well, I hope mine goes that smooth
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
Reply With Quote
  #5  
Old Sun Jan 6, 2013, 10:32 PM
Cam Cam is offline
Member
 
Join Date: Oct 2012
Location: Jacksonville, Florida
Posts: 88
Thanks everyone. It kind of itches but if this is the worst I get then I am ok with that... As long as they do not put me back in isolation, I hated that when I could not leave the room for 18 days....
__________________
Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Day 5 and I'm on my way (SCT) bailie MDS 97 Sat May 27, 2017 01:36 AM
Patient Education Day -- Free AAMAC Canada 0 Thu Jul 9, 2015 03:04 PM
I survived transplant at day +11. rar MDS 10 Thu Aug 28, 2014 05:42 PM
Red sore spots underarms and on scalp kyis MDS 2 Wed Jan 1, 2014 11:53 PM
AAMAC Patient Education Day in Montreal, October 19, 2013 Marrowforums Canada 0 Wed Sep 18, 2013 08:40 PM


All times are GMT -4. The time now is 02:38 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org