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#1
Mon Jan 28, 2013, 09:20 PM
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50 days out
I am 50 days out and everything is looking good. I am beating a 2X4 when I say that... I still have a little GVHD but the Drs are really happy and say it is good to have it now and get it out of way. I am still taking prednisone for it. I have begun exercising again. I wa;led/ran 3.5 miles this morning outside and it was awesome. I can not go back to work since I work at an elementary school until the fall. So I have time and a long list of things I can not do. So I am making the most of it. Is funny I started trying to be healthy prior to my BMT now that I am home and have time I am making my family eat healthier and getting myself well and healthy again... I am so ready to get to day 100 to have my hip redrilled to make sure I kicked MDS's tail... Thank you to all that have followed me and given me advice. Believe me when I say the road has not been easy but it has moved and for that I am thankful... I have kept a saying through out this and I will share it with you... This to Shall pass... I say it everytime something new has come up...
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Cam, BMT 12/6/12 for MDS, diagnosed August 2012 beat it in December 2012 
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#2
Mon Jan 28, 2013, 09:48 PM
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Love your attitude Cam. Keep it up - it really is such positive reinforcement.
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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#4
Tue Jan 29, 2013, 11:36 AM
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That's all such great news, Cam! thanks for the update.
 Have you thought about how you'll celebrate Day 100 yet? I celebrated mine by walking to a nearby brasserie (during the afternoon when it was quiet) for a mocktail in a fancy glass!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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#7
Wed Jan 30, 2013, 10:14 AM
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Quote:
__________________
36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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#8
Wed Jan 30, 2013, 09:23 PM
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Quote:
__________________
Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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#9
Thu Jan 31, 2013, 12:49 AM
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Congrats Cam
Cam;
I am very happy - for you and for your family. I wish you all the best. Good Luck. Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS  . and I can't help the one I love the most.
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