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#1
Thu Mar 14, 2013, 03:23 PM
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bone and joint pain with mds?
dx with mds 2yrs ago. had success with revlimid for 18mos before low wbc, ans .4. off now for 2mo and 1bt. ihave mod to severe bone pain in upper back both arms and shoulders for last 3 months. anyone else experiencing bone pain ?
 
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#2
Thu Mar 14, 2013, 05:56 PM
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jayc,
The subject of bone pain, from the disease or from a treatment, has come up in the forums in many different contexts. You might want to review some of these threads where bone pain has been discussed: ATG at Moffitt
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#4
Fri Mar 15, 2013, 05:50 AM
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I'm really interested to read your post because I frequently have shoulder pain. I have blamed it on computer work, but have often wondered if it's exacerbated by the MDS.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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thank you
