| Home Forums |
|
|||||||
| Pediatrics Treatment for juvenile patients |
 |
|
|
Thread Tools | Search this Thread |
|
#1
Thu Jan 31, 2013, 05:26 PM
|
|||
|
|||
|
Searching for a similiar case as our son
Hi I'm the parent of a 3 y/o boy who has been diagnosed with AA in march of 2012 unfortunately this isn't his only diagnosis. He is also diagnosed PDD-NOS which lies on the Autism spectrum. He has 2 possibly 3 other medical issues as well I am in search of another similar case. I have been looking for another family like ours to compare notes and find help in suggestions on how and where to proceed on our way to a now suggested BMT. Please if anyone has any information contact me I'm starting to think my son is the only case with a child on the spectrum with AA.
Thank you. -T 
|
|
#2
Thu Jan 31, 2013, 08:08 PM
|
|||
|
|||
|
I'm assuming his AA affects his hemoglobin, white cells, and platelets.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
|
|
#3
Thu Jan 31, 2013, 08:37 PM
|
|||
|
|||
|
Yes all of his counts are affected. Trying locate another parents with a child on the spectrum and AA to see if they have any advice or what they may have founf or courses of treatment and or specific facilities.
|
|
#4
Thu Jan 31, 2013, 09:28 PM
|
|||
|
|||
This group on facebook has many small children. You might try posting on this facebook page.
http://www.facebook.com/BandOfMother...mia?ref=stream
__________________
Scott 51 yr SAA 3/2012. PTL 7, ANC 200. ATG finished 4/9/2012. 2/4/2013. TX independent:; PTL 133, ANC 3300, Hgb 13.4.
|
|
#6
Sun Mar 24, 2013, 09:19 AM
|
|||
|
|||
|
My nephew has AA and Autism. Your son is not alone.
__________________
Michelle, Aunty of Christian age 5; diagnosed AA 2012; treated with ATG 2012; currently on cyclosporine
|
|
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Newly Diagnosed 8 yr old son. ANC and platelets all over the place. | curlygirl | Pediatrics | 46 | Thu Mar 17, 2016 08:44 PM |
| Searching for a similar case as my son | Sfdcoach | AA | 5 | Wed Jun 5, 2013 12:49 PM |
| Mum to son with AA | sasba | AA | 5 | Wed Apr 24, 2013 08:42 PM |
| a mother of son with aa | cskidmore | AA | 3 | Tue Nov 25, 2008 10:14 PM |
