| Home Forums |
|
|||||||
| Transplants Bone marrow and stem cell transplantation |
 |
|
|
Thread Tools | Search this Thread |
|
#26
Tue Jan 22, 2013, 09:19 PM
|
|||
|
|||
|
Phil,
I am hoping things are OK. Haven't seen a post in a few days so was wondering how the back pain is and if you got it under control. Will be praying for you.
__________________
Jody, mother or Trevor 23. Diagnosed VSAA 3/11 , ATG cyclosporin 3/11 response 6/11, Relapse 1/13, Round 2 ATG 1/13 
|
|
#28
Wed Mar 13, 2013, 11:21 AM
|
|||
|
|||
|
Sorry I haven't posted in forever.... I made it thru the transplant and got out around the 23rd of Jan. I was home two days and got C-Diff in my stomach and was readmitted for about 5 days to treat.
Its now march 13th, ive still been having stomach issues, but, its getting a lil better. Ive been home since early Feb. and ive been doing good and feeling better each day. I pray everyone is doing well !
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
|
|
#29
Wed Mar 13, 2013, 05:29 PM
|
|||
|
|||
|
Thanks for the update, Phil. Keep feeling better every day!
Is the back pain gone?
|
|
#31
Fri Mar 15, 2013, 11:26 AM
|
|||
|
|||
|
They never told me why the back pain,i guess because of the spine puncture.
I'm about day 70 days post transplant,, has anyone had issues with weight loss ? I keep losing weight, I've lost over 40 lbs., and it keeps dropping, I've been dealing with stomach issues which my doctor knows about and its trying to treat. The issues are soft stool and going to the bathroom atleast twice a day. The doc doesn't think its gvhd..
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
|
|
#32
Fri Mar 15, 2013, 08:12 PM
|
|||
|
|||
|
I hope your transplant turns out well. I will pray over you. I will also be on the forum if you want to speak. I truly believe you will be ok. Try to read some inspiring stories or messages of hip.
|
|
#33
Fri Mar 15, 2013, 08:20 PM
|
|||
|
|||
|
DPMeeks
Excuse me my err. I see that you have received the transplant. I read somewhere that a bit of gvhd means that it is working but still I font know. Either thank god you're alive and I wonder if your counts have stabilized. I would ref. ask for an xray of your spine and consult a doctor. Good luck.
|
|
#34
Sat Mar 16, 2013, 11:22 PM
|
|||
|
|||
|
70 days post transplant -- YAY! As far as weight, I gained weight. I am still on steroids and have fought to lose 12 of the 40 I gained.
 You sound good and like you are taking it all in stride. As for the gvhd, I developed it after the 100 day mark, making it chronic gvhd. BUT I'm alive and enjoying my family - just require more resting and caution around people. Hang in there!
__________________
Lori, female age 53 dx MDS-RAEB-II 15% blasts 10-2010. Induc Chemo 10/14/10 for 7 days - results unacceptable so 5 additional days chemo. Complete Remission 12/10/10!! SCT 1-11-11 remission achieved!!! BMB 1-29-11 100% Donor!  cgvh eyes,skin (Caringbridge.org/visit/loripatrick)
|
|
#35
Thu Apr 25, 2013, 05:45 PM
|
|||
|
|||
|
another update
... im like day 116 post SCT now, got my day 100 BMB results this past Monday and it showed no leukemia cells .I haven't had any issues so far except thrush I cant seem to get rid of and my stomach is still grumpy. My doc thinks its mainly due to all the meds. It seems as though ever since I had c-diff my stomach has never been the same. I pray everyone is doing well !!
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
|
|
#36
Thu Apr 25, 2013, 06:41 PM
|
|||
|
|||
|
Hope shared
Phil,
Thanks for sharing your milestone. You give me hope ! Prayer for continued improvements in health.
__________________
Wife and mother of three young boys, diagnosed at age 39 with AA 2007; treated with ATG and cyclosporine; progressed to MDS end of 2012; MUD on June 26, 2013.
|
|
#37
Fri Apr 26, 2013, 02:57 AM
|
|||
|
|||
|
Excellent news Phil. So glad to hear! I am day +50 today.. halfway to the magic +100!! Hope it all continues positively for you!
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
|
|
#38
Sat Apr 27, 2013, 10:43 AM
|
|||
|
|||
|
4bcsboys and SLB.. thank you for the kind words ! Im sure they will find a match, im African American and they originally told me I had a 20% chance for a match and God provided me with 3 10/10 matches so dont worry ! Put your faith in him..
50+ post transplant is great It can be a struggle but take your time and itll be here before you know it. Thankfully the days have gone by without much issues, im trying to figure out my upset stomach issues but other than that ive been blessed. thank you God for watching over me...
__________________
Phil 46yrs old, AML 8-20-12, full remission 9-13-12 going for BMT 12-31-12. Transplant performed on 1-8-2013
|
|
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Another MDS to BMT - New forum member | Whizbang | Tell Your Story | 285 | Wed Sep 17, 2014 01:18 PM |
| Being Admitted 11/12!!! | Susan L | Transplants | 18 | Wed Nov 13, 2013 08:55 PM |
| Admitted for transplant | Heather8773 | Transplants | 15 | Sat Oct 19, 2013 06:35 PM |
| Al admitted to hospital | Al's Wife | MDS | 7 | Tue Aug 14, 2012 09:41 PM |
