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#1
Tue Mar 12, 2013, 10:59 PM
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Dallas/Fort Worth Communities of Hope
I have been trying to start a Community of Hope in the Dallas area.
I recently met someone from Ft. Worth interested in participating in one. If anyone is interested in participating in either place, or a combined group, please let me know.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ 
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#2
Wed Mar 13, 2013, 04:01 PM
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You might check if any of the Texas forum members who posted here or here or here or here are still interested.
Many forum members allow you to email them via Marrowforums. You see the link for this on their forum profile page, which you get to by clicking on their name. Emailing is a good approach if they haven't posted in a while. Otherwise you can try sending them a Private Message (also from their profile page), which they'll see when they next visit or log in.
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#3
Wed Mar 13, 2013, 04:41 PM
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Thank you, Neil.
I will do that.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#4
Fri Jul 26, 2013, 12:48 PM
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I would like to participate
My contact is keri@emzkreations.com.
__________________
Keri Anne, widow of Tom W. age 63; dx Myelodysplastic Syndrome 10/26/11; Rec. Aloe at Audie Murphy SA, TX 5/12; passed 10/23/12;.
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#5
Fri Jul 26, 2013, 03:19 PM
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Keri,
I wrote you an email.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#6
Fri Jul 26, 2013, 03:29 PM
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Neil,
I had contacted all of them but got no reply.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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