MDS Foundation to Hold Eleven MDS Patient and Family Forums in 2013

[Marrowforums]

The Myelodysplastic Syndromes Foundation will hold 11 free one-day conferences for MDS patients and their families in 2013. Attendees at each conference will hear from leading MDS experts. Breakfast and lunch are included.

To sign up for any conference or get more information, phone the MDS Foundation at 1-800-MDS-0839 (1-800-637-0839, toll-free) or 609-298-1035 (outside the U.S.) or email Deborah Murray at dmurray@mds-foundation.org.


Conference locations and schedule

Click links for conference threads.

Gainesville, Florida - Saturday February 23, 2013

Speaker:

• Dr. Christopher Cogle
  University of Florida & Shands Hospital

San Diego, California - Saturday March 2, 2013

Speakers:

• Dr. Rafael Bejar and Dr. Peter Curtin
  Moores Cancer Center at the University of California, San Diego

Portland, Oregon - Saturday March 23, 2013

Speaker:

• Dr. Gabrielle Meyers
  OHSU Knight Cancer Institute

Atlanta, Georgia - Saturday April 20, 2013

Speaker:

• Dr. Amelia Langston
  Emory Winship Cancer Institute

Berlin, Germany - Saturday May 11, 2013

This MDS Patient & Family Forum is being held in conjunction with the The 12th International Symposium on Myelodysplastic Syndromes, which takes place May 8 to May 11 in Berlin.

Detroit, Michigan - Saturday June 15, 2013

Speaker:

• Dr. Abhinav Deol
  Karmanos Cancer Institute at Wayne State University

Chicago, Illinois - Saturday July 13, 2013

Speaker:

• Jamile Shammo, MD
  Rush University Medical Center

Philadelphia, Pennsylvania - Friday August 23, 2013

Speaker to be announced.

Long Island, New York - Saturday September 28, 2013

Speaker:

• Steven L. Allen, MD
  Monter Cancer Center/NSLIJ Cancer Institute

Indianapolis, Indiana - Saturday October 12, 2013

Speaker:

• Larry Cripe, MD
  Indiana University Simon Cancer Center

Buffalo, New York

Watch The MDS Foundation's Patient and Family Forums page for announcement of the date.

[Darice]

Jens would love to go to Germany (he is German) for his birthday . . . May 11. Wouldn't that be something if we were to wind up going to that one because none of the ones in the US are close enough? It's a crazy world sometimes.

[Marrowforums]

Details have now been announced for the Atlanta meeting. See the news thread.

[Marrowforums]

The city and date for the Michigan conference have been announced:

Detroit, Michigan - Saturday June 15, 2013

See conference details.

The date for the Philadelphia conference has also been announced: Friday August 23, 2013

[Marrowforums]

The MDS Foundation has added two free Patient and Family Forum meetings in October:

Rochester, New York - Saturday, October 19, 2013, 9:30am-2:00pm

Location:

James P. Wilmot Cancer Center
Strong Memorial Hospital (Google map)
601 Elmwood Ave
Rochester, NY ‎

Presenter

• Dr. Jane Liesveld, Strong Memorial Hospital

Topics:

• New Therapies and Patient Treatment Options
• Patient Support Group Open Discussion
• Quick Tips for Patient and Caregivers
• The MDS Foundation’s Building Blocks of Hope

Indianapolis, Indiana - Saturday, October 26, 2013, 9:30am-2:00pm

Location:

JW Marriott Indianapolis (Google map)
10 South West Street
Indianapolis, IN

Presenter

• Dr. Larry Cripe, Indiana University

Topics:

• New Therapies and Patient Treatment Options
• Patient Support Group Open Discussion
• Quick Tips for Patient and Caregivers
• The MDS Foundation’s Building Blocks of Hope

To sign up, see the contact information above.

[Marrowforums]

The MDS Foundation has added a free MDS Spouse Coping and Caring meeting in October:

Philadelphia, Pennsylvania area - Saturday, October 26, 2013, 1:30pm-3:30pm

Location:

The home of Rochelle Ostroff-Weinberg, spouse of the late Robert Weinberg
28 Greenhill Lane (Google map)
Wynnewood, PA

Discussion moderator

• Rochelle Ostroff-Weinberg

Topics:

• Tell your story; share your experience
• Learn how others cope
• Talk about your concerns

Registration is required by emailing Janice Butchko or phoning her at 1-800-637-0839.

Please register by Friday, October 18.