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MDS Myelodysplastic syndromes

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  #1  
Old Wed Nov 13, 2013, 01:41 PM
alawe alawe is offline
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Join Date: May 2013
Posts: 39
Bone marrow transplant

Hi every one
2 month i used thalidomide but yesterday my dr tell me no thing change
and every time i going to him he look to my Peripheral blood smear and i think he look some thing but he dont tell me nothing!!!!
and then he told me one month later we have prepare to Bone marrow transplant!!!
now i am scare....
it is dangerous for me???
Explicitly please...
and some advice...
thank you very much...
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  #2  
Old Thu Nov 14, 2013, 03:47 PM
Birgitta-A Birgitta-A is offline
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Location: Stockholm, Sweden
Posts: 1,918
Stem Cell Transplantation

Hi alawe,
Is it not possible for you to get kopies with all blood and bone marrow results?

Two months with Thalidomide is too short. Then Revlimid - as you know - is a very good drug for patients with the chromosome aberration 5q-. The patients can respond several years.

Perhaps your blast cells have increased?

A Stem Cell Transplantation (SCT) is much more expensive than Revlimid treatment that should be tried first in a patient like you. I wonder how your doctor is thinking.

A SCT is always risky - look at Home in the meny of MarrowForums and search for SCT. You are young and that decreases the risk.
Kind regards
Birgitta-A
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  #3  
Old Fri Nov 15, 2013, 04:26 AM
alawe alawe is offline
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Join Date: May 2013
Posts: 39
Quote:
Originally Posted by Birgitta-A View Post
Hi alawe,
Is it not possible for you to get kopies with all blood and bone marrow results?

Two months with Thalidomide is too short. Then Revlimid - as you know - is a very good drug for patients with the chromosome aberration 5q-. The patients can respond several years.

Perhaps your blast cells have increased?

A Stem Cell Transplantation (SCT) is much more expensive than Revlimid treatment that should be tried first in a patient like you. I wonder how your doctor is thinking.

A SCT is always risky - look at Home in the meny of MarrowForums and search for SCT. You are young and that decreases the risk.
Kind regards
Birgitta-A
Hi Birgitta-A and thank you...
i have all of my blood result...but the problem is i don't know my dr what see in my blood smear when he look with Microscope .when i look to my result i see nothing but my blood smear may be he see some thing with Microscope.
but i see him note some thing in my file...
(in blood smear i see EO)
What mean EO???
about Revlimid you know my problem in my country does not exist.
Thank you very much my friend
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  #4  
Old Fri Nov 15, 2013, 06:39 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Eosinophil cells

Hi alawe,
EO is short for eosinophil cells - a kind of WBC that we all have. http://www.healthline.com/health/eos...count-absolute

The interesting observation is if your doctor finds blast cells - immatur cells - in your blood or more than 5% blast cells in your bone marrow.. Ask him that question.
Kind regards
Birgitta-A
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