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MDS Myelodysplastic syndromes

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Old Fri Nov 15, 2013, 07:10 PM
Sylvia R Sylvia R is offline
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Join Date: Nov 2013
Location: Venice, California
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Looking for new healthcare

My son has MDS with no treatment and no blasts just all low counts. He has had this for 10 years and he is now 24. He is with a Cedars HMO Dr Drazin but United Healthcare is terminated his coverage in January. It is time for a change. Does anyone have Kaiser? It is hard for my son to follow up and keep track of everything so we could use managed care with a good system. Are there any good doctors out there who would take MediCal and know other young people with MDS?
Also are there any other young people who got MDS in LA?
Sylvia
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Sylvia, mother of Cameron who was diagnosed with MDS when he was 14 years old 10 years ago. No treatment-- watch and wait.
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