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#1
Mon Jan 27, 2014, 10:28 PM
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Cellarity after Transplant?
Hi just wondering what yalls cellarity was after transplant. Did it continue to go up after day 100?
Ron's was about 5% hypocellular before transplant and his 100 day bmb results came back at 40%. (Yaaaay I guess that means AA free!) 70% would be normal for his age but 40% is waaaay better then 5% for sure! Just wondering does it continue to go up and what were normal results after a year or so transplant
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim 
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#2
Tue Jan 28, 2014, 03:50 AM
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Joe's was about the same at the 100 day mark and he's the same age as Ronald. Our doc felt that was acceptable being less than 5% pre transplant.
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Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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#3
Tue Jan 28, 2014, 10:46 PM
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Thx Samantha! Has he had any more biopsys? Has the cellaruity changed?
Are y'all so excited to be approaching the year mark!!! Congrats! Has it passed faster then you thought it would? Hopefully!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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#4
Wed Jan 29, 2014, 07:36 AM
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You're welcome! No more biopsies since then, but he will get another at his 1 year appointment. Time definitely started to go quicker after we got passed the 100 days. The only reminder of being sick is when Joe goes to his monthly appointments. I still get a knot in my stomach and hang by my phone to get a text with his counts on that day!
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Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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#5
Thu Jan 30, 2014, 02:08 AM
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I can relate to that! If for some reason I couldn't go to the apt. It's the one and only phone call I allow to be interrupted when I'm w a client. Good to read about the 100 days and happy early 365 days!!!!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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#6
Sat Feb 1, 2014, 12:38 AM
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Hi Heather, yes cellularity can continue to rise after 100days. I believe it also may rise once Ron's off his immunosuppression meds.
Wonderful news that he's doing so well!!
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Dena Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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#7
Mon Feb 3, 2014, 01:37 AM
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Thx Dena! Happy to read your good news as well!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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