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#1
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AAMDS on Charity Navigator
I looked this organization up on Charity Navigator and it is highly rated so I made a donation. You can check on it too.
http://www.charitynavigator.org/
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Caregiver for husband |
#2
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Caregive,
There is a great group of people that work there. They provide great hands on support if you need it as well as a very informative website and conferences. There is also a peer support network and community of hope groups that they encourage. I suggest you call them, if you haven't done so already. Your money is well spent. www.aamds.org
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
#3
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I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
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Caregiver for husband |
#4
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Quote:
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ |
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