Question about donor match

[Scootin102]

Our son has a donor and we are beyond excited, humbled, and petrified. His BMT will take place in May at a bone marrow transplant unit with an excellent reputation. We'll move forward with great confidence in the staff of this hospital, but I have a question. The transplant coordinator told us this week that she can't tell us the level that the donor matches our son (10/10?) because of privacy laws. Is this standard?

[Whizbang]

That's garbage... Tell your Transplant DOCTOR, that you demand to know the HLA match level...

[curlygirl]

They can't tell you the name for a year or two but they can certainly tell you the level of match. The person talking to you gave you bad information.

[DanL]

They can tell you the match, the blood type, their CMV/HSV/HPV/EBV, and many other prior infection statuses as well. I think you were given poor information and should ask the doctor directly about the donor information.

[Scootin102]

Thanks, everyone--this is very helpful and I will encourage my son to get this information. I appreciate the advice!

[vickij]

I was told it was European male, 10/10 match & his blood type.

[dfantle]

Vickij, Looks like a great match. The other thing you might want to ask is if the donor and your son are CMV positive or CMV negative.

Best of luck with his transplant.