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#1
Tue Mar 4, 2014, 08:37 PM
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Cyclosporine and fluid intake
How much fluid does your doctor want you to drink while your on Cyclosporine? When your tired of water and tea, what other low calorie fluids are healthy? Seems everything is either full of sugar or artificial sweetener.
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#2
Tue Mar 4, 2014, 10:16 PM
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I've been trying to increase my fluid intake so I've just been having a twist of lime or lemon in sparkling mineral water. Very refreshing!
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion
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#3
Wed Mar 5, 2014, 05:47 PM
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There are cucumbers, watermelon, soups...
Does anyone drink Nettle Tea? It is supposed to be good for kidney cleansing and my son actually likes it.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic... 
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#4
Wed Mar 5, 2014, 07:12 PM
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Thank you for your responses. How much fluid intake do you try to get per 24 hours? Is Gatorade acceptable?
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#5
Wed Mar 5, 2014, 09:22 PM
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I think it's just depends on various factors. Weight, CsA dosage, but mostly on labs (Creatinine). My son aims for at least a gallon daily plus any other food choices that are hydrating. We just try to monitor this as best as we can, but usually see-saw.
BTW, I sound like a broken record always asking if he's been drinking enough  Sad, but truehttp://www.livestrong.com/article/28...water-content/
__________________
06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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#6
Thu Jun 12, 2014, 09:10 AM
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I drink 3 and a half liters a day.
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