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#1
Fri May 30, 2014, 12:34 PM
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Bone Marrow Transplant Facility
Could anyone from their experience recommend a bone marrow transplant facility that has handled their care extremely well. I have both large PNH clone and Mild Aplastic Anemia.
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Diagnosed PNH 2014/ Autoimmune AA 2006 treated with prednisone/ Hemoglobin 10.1; ANC .55; Platelets 150K 
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#2
Fri May 30, 2014, 05:32 PM
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I have been very pleased with my care that I received from CBCI at Presbyterian St Lukes medical in Denver, CO. The hospital staff, nurses, and doctors have all been excellent and accessible all the way through.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#3
Thu Jun 5, 2014, 02:42 AM
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My husband had his transplant for small PNH clone w. sever aplastic anemia at Houston Methodist .. I know 3 other people who received transplants in the Houston med center all different ages one at MD Anderson w lukimia about 12 yrs and age late 60s (the other two at Houston Methodist) all are doing very very well. One had hers 10 years after having AA w lots of transfusions an I believe she's 8 yrs out
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim
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#4
Sat Jun 7, 2014, 09:22 PM
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DO NOT get your transplant or care at Mayo Clinic Rochester! I had my transplant there and I wish I hadn't. Horrible care, doctors, nurses, etc.
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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#5
Mon Jun 16, 2014, 02:39 PM
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Fred Hutchinson in Seattle. (where I had mine)
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Dena Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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#6
Wed Jun 18, 2014, 07:14 PM
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Ussoccer,
Sent you a PM. Please let me know if you did not receive it.
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#7
Sat Jun 28, 2014, 12:51 PM
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Hello Michael, welcome. Stem cell transplants are available for ages beyond 70. What have your mother's Drs. suggested?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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