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  #1  
Old Sun Sep 21, 2014, 12:04 PM
Data Data is offline
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Question How long for a diagnosis

I am curious to know how long it usually takes to get a diagnosis (of any of the blood disorders). My blood levels have been decreasing since January of this year. I have been seeing a hematologist for almost two months now. I have had numerous blood tests (CBCs, tests for virus antibodies, etc.), a bone marrow biopsy (was negative for AML and MDS), a CT scan (radiologist suggested a MRI), and a MRI (radiologist suggested another bone marrow biopsy under CT guidance). I am scheduled for another bone marrow biopsy to be done under CT guidance. While blood counts aren’t critically, it is disconcerting to know that something is not right but not know what is wrong and not know what an appropriate treatment is. My only physical symptom is that I am extremely tired all the time. Any opinions would be greatly appreciated. My current counts are:

Platelets: 47 x10E3/uL
Hemoglobin: 9.7 g/dL
MCH: 38.0 pg
EOS: 10 %
MCV: 115 fl
RDW: 18.1 %
RBC: 2.55 x10E6/uL
WBC: 2.3 x10E3/uL 3.4
Hematocrit: 29.4 %
Neutrophils: (Absolute) 1.1 x10E3/uL
MCHC 33.0: g/dL
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.

Last edited by Data : Sun Sep 21, 2014 at 02:17 PM.
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Old Sun Sep 21, 2014, 12:24 PM
sbk007 sbk007 is offline
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I can tell you that my father was suspected to have lymphoma but after 3 BMB's they couldn't get a diagnosis. Then they did the CT guided BMB and it still came back negative. It sounds like they are having trouble diagnosing you....Lack of energy is a symptom of anemia(Low Hemoglobin) and yours is low but not crazy low but still could be why you're so tired. On another note this is a depressing and anxious time and that too can make you tired. If you can do things do them. You'd be surprised how a walk around the block can make a difference.
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Old Sun Sep 21, 2014, 02:16 PM
Data Data is offline
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I agree

Quote:
Originally Posted by sbk007 View Post
I can tell you that my father was suspected to have lymphoma but after 3 BMB's they couldn't get a diagnosis. Then they did the CT guided BMB and it still came back negative. It sounds like they are having trouble diagnosing you....Lack of energy is a symptom of anemia(Low Hemoglobin) and yours is low but not crazy low but still could be why you're so tired. On another note this is a depressing and anxious time and that too can make you tired. If you can do things do them. You'd be surprised how a walk around the block can make a difference.
007,
I appreciate your comments and agree. I was hospitalized a few years ago for anemia and my hemoglobin was worse than now and I wasn't this tired. I do try and get out as much as I can.

Thanks again!!
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.

Last edited by Data : Sun Sep 21, 2014 at 05:36 PM.
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Old Sun Sep 21, 2014, 09:35 PM
Chirley Chirley is offline
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Sorry but some people remain in limbo diagnosis wise for years.
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  #5  
Old Sun Sep 21, 2014, 10:29 PM
triumphe64 triumphe64 is offline
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Have they done a retic test?
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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Old Mon Sep 22, 2014, 07:25 AM
Data Data is offline
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OMG Reality check

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Originally Posted by Chirley View Post
Sorry but some people remain in limbo diagnosis wise for years.
Thanks for the reality check. I don't know if I can stand this that long!
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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  #7  
Old Mon Sep 22, 2014, 07:26 AM
Data Data is offline
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No Retic test

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Originally Posted by triumphe64 View Post
Have they done a retic test?
They have not done the retic test. I have wondered several times why they never checked that.
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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  #8  
Old Mon Sep 22, 2014, 11:10 AM
triumphe64 triumphe64 is offline
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Quote:
Originally Posted by Data View Post
They have not done the retic test. I have wondered several times why they never checked that.
Ask them.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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