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AA Aplastic anemia

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  #1  
Old Sun Sep 21, 2014, 11:21 AM
Marlene Marlene is offline
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Eleanor Roosevelt

We just finished watching the Ken Burns latest on the Roosevelts. Highly recommend it. The end was mostly about Eleanor and the last 15 years of her life. She was diagnosed with Aplastic Anemia and upon further searching the web about her they think that her Aplastic Anemia was brought on by TB which she contracted maybe 40 years earlier. Apparently the TB was not diagnosed and consequently, she was not treated properly.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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Old Sun Sep 21, 2014, 01:43 PM
Neil Cuadra Neil Cuadra is offline
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Eleanor Roosevelt visited the City of Hope hospital in Southern California in January 1950. You can read her newspaper column about it here. It's ironic that City of Hope became the major local treatment center for aplastic anemia, which claimed Mrs. Roosevelt's life in 1962.

When my wife had her ATG treatment for aplastic anemia at City of Hope, we noticed the portrait of Eleanor Roosevelt on the wall and read about her visit so many years before.
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Old Mon Sep 22, 2014, 08:20 AM
Marlene Marlene is offline
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Thanks for posting the column. Very interesting to read about it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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Old Tue Sep 23, 2014, 05:00 AM
NLJabbari NLJabbari is offline
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Both Eleanor Roosevelt and Madame Marie Curie's deaths were caused by Aplastic Anemia. Madame Curie of course acquired AA due to her long term exposure to radiation.
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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Old Tue Sep 23, 2014, 08:00 AM
Marlene Marlene is offline
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Thanks for posting that about Madame Curie. Interesting how so many different things can cause bone marrow failure. And for many, it's something you were exposed to well before any symptoms of SAA showed up. I think that's why most cases of SAA are idiopathic.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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