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#2
Sat Oct 18, 2014, 06:16 PM
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Check out www.AAMDS.org for Communities of Hope.
Call the Patient Educator. She can help you find others similar to you. She also has loads of information.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/ 
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#3
Sun Oct 19, 2014, 01:56 PM
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There's a list of Support Groups and Communities of Hope at Marrowforums too, but I don't see one near Springfield or the neighboring cities.
You could ask Barnes Hospital if they know of support group among patients being treated there. The Community of Hope in Chicago is focused on MDS.
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#4
Sun Oct 19, 2014, 09:08 PM
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In Illinois, but near Chicago...
You might want to check out some of the Facebook groups for AA.
__________________
Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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