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AA Aplastic anemia

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  #51  
Old Mon Nov 3, 2014, 01:36 AM
Chirley Chirley is offline
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I'm so sorry to hear this and this won't be any comfort at this time but in the future you can take some comfort from knowing you both did everything you could to win the battle.
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  #52  
Old Mon Nov 3, 2014, 05:51 PM
Caregive Caregive is offline
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Thank you for posting your father's journey. Prayers to you and your family.
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Caregiver for husband
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  #53  
Old Wed Nov 5, 2014, 10:13 PM
curlygirl curlygirl is offline
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Alcof, I'm very sorry to hear that. Thank you for taking such good care of your Dad on this sad journey.
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  #54  
Old Thu Nov 6, 2014, 02:25 AM
Cheryl C Cheryl C is offline
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Deepest sympathy to you Alcof and all your family. No one could have done more to help your father than you did. If you have a bible, Revelation 21:1-4 may be of comfort to you. There is a better day coming. God bless.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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  #55  
Old Thu Nov 6, 2014, 09:29 AM
Marlene Marlene is offline
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Alcof,

I'm so sorry to hear that your Father passed away. He was very lucky to have you as his advocate. I'm sure he appreciated all that you did for him.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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  #56  
Old Thu Nov 6, 2014, 12:34 PM
Whizbang Whizbang is offline
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Join Date: Aug 2013
Location: Central NJ
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Alcof,

So sorry for your loss, may eternal light shine upon him...

God Bless,
David
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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  #57  
Old Thu Nov 6, 2014, 12:52 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
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So sorry to hear this!

Peace to you both -
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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  #58  
Old Thu Nov 6, 2014, 03:16 PM
Sue H. Sue H. is offline
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Join Date: Dec 2013
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Dear Alcof,
I have been following your story and send you my deepest condolences at this sad time. I wish you much strength. The way you looked after your father and researched every possibility for him was so very inspiring. May your dear father rest in peace.
Thinking of you,
Sue H.
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