Participating In VIDAZA Oral Drug Clinical Trial

[nurseAngie]

My mom is currently participating in a Vidaza clinical trial with an oral medication. I'm looking for others who may be in the same trial. She finished first cycle and her counts are the worst they've ever been. Wbc 0.6, hgb 7.3, platelets 9. She had to get another blood transfusion yesterday along with her first platelet transfusion. She has three weeks to get her wbcs up or shes out of the trial. She took neupogen inj for five days and her wbcs went down. I'm worried. Anyone else in the same boat?

[lfeinsmith]

Originally Posted by nurseAngie

My mom is currently participating in a Vidaza clinical trial with an oral medication. I'm looking for others who may be in the same trial. She finished first cycle and her counts are the worst they've ever been. Wbc 0.6, hgb 7.3, platelets 9. She had to get another blood transfusion yesterday along with her first platelet transfusion. She has three weeks to get her wbcs up or shes out of the trial. She took neupogen inj for five days and her wbcs went down. I'm worried. Anyone else in the same boat?

I'm considering going into phase II later this year

Let me know how it goes

[Golf_Nut]

My doctor identified me as a Low Risk MDS patient about a year ago. He has been 'keeping an eye on it' since that time.

In my last appointment about 4 days ago, he suggested that I consider a clinical trial using oral vidaza.

Does anyone know much about this trial from experience? I have read about it on Clinical Trials .gov

Are there side effects? If so, can you tell me which are first? or the worst?

[Hopeful]

Hi Golf Nut,

Typically low risk MDS is not treated with Vidaza. To my knowledge, Vidaza is not a permanent cure. So, it seems like you would not want to start using it until you really needed it! Also, all of these drugs have side effects.

What are your counts now? Are you still low risk? Are you transfusion independent? Have you had a recent BMB?