Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Reload this Page Hi Group with much sadiness
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Feb 13, 2015, 09:11 PM
amyangel amyangel is offline
Member
  
Join Date: Jun 2014
Location: Wisconsin
Posts: 64
Hi Group with much sadiness
Prayers and blessing to all of you ,I just wanted to share with all of you that
Amy peacefully in her sleep went home to be with her Heavenly Father on Wednesday February 11 , 2015 .
As a family we look at this as a celebration of Life !! Amy has a new body and she got her healing !! Praise God Amen!

She is already missed ,but we know she is walking, running , smiling and pain free
Amy's Celebration of Life will be on Saturday February 21, 2015 at Calvary Bible church
1450 Oakridge Rd, Neenah, WI 54956
Time visitation is from 9:30 am to 11:00 a.m
Service is at 11:00 a.m. with a lunch to follow

Amy had a great love for dark blue jeans and we are encouraging everyone to feel free to wear them also .
__________________
Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
Reply With Quote
  #2  
Old Fri Feb 13, 2015, 10:27 PM
Neil Cuadra Neil Cuadra is offline
Owner
  
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Sue,

You did everything you could for Amy and she surely felt loved every day. I hope her time in hospice was peaceful and that everyone close to her had their chance to visit and talk.

I'm sorry that you must live without her now, but glad you find comfort that she's in a better place. She'll always be in your heart.
Reply With Quote
  #3  
Old Fri Feb 13, 2015, 11:51 PM
bebop bebop is offline
Member
  
Join Date: May 2010
Location: Maysville Ga
Posts: 323
I am so sorry for your loss.
Reply With Quote
  #4  
Old Fri Feb 13, 2015, 11:53 PM
Chirley Chirley is offline
Member
  
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
I'm sorry for your loss but glad you can take comfort from your faith.

May Amy rest in peace.
Reply With Quote
  #5  
Old Sat Feb 14, 2015, 08:43 AM
Bhutt Bhutt is offline
Member
  
Join Date: Apr 2013
Location: Canada
Posts: 44
So sorry to hear. You can take comfort that you were a great mother and got to spend your time with her until this point. She will be waiting at heavens gate to meet you with a big smile.

God bless
Blair
Reply With Quote
  #6  
Old Sat Feb 14, 2015, 01:14 PM
vickij vickij is offline
Member
  
Join Date: Apr 2013
Location: Connersville, Indiana
Posts: 117
So Sorry for your loss. My thoughts and Prayers will be with you & your family. It is good you know she is in a better place.
__________________
62 yr old female. dx AA 3/12.treated with ATG 4/12.dx MDS 4/13. MUD BMT on June 25th,2013
Reply With Quote
  #7  
Old Sat Feb 14, 2015, 06:21 PM
Cheryl C Cheryl C is offline
Member
  
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
My deepest sympathy to you in your loss of Amy. May God continue to bless and comfort you.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #8  
Old Sat Feb 14, 2015, 06:47 PM
DanL DanL is offline
Member
  
Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Sue,

I am sorry for your loss of Amy, and wish to express my deepest sympathies for you and your family.

Dan
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
Reply With Quote
  #9  
Old Sat Feb 14, 2015, 11:18 PM
PamMc PamMc is offline
Member
  
Join Date: Dec 2014
Location: Tennessee
Posts: 25
I'm so sorry to hear of Amy's passing. I am sending love and prayers to you and your family. May God fill you with His peace and joy. I am praising God with you that she is now walking, running, smiling, and pain free, and has received her healing. What a tribute you have given her.
Reply With Quote
  #10  
Old Sat Feb 14, 2015, 11:22 PM
Lifeguard Lifeguard is offline
Member
  
Join Date: Sep 2011
Location: Australia
Posts: 37
I'm so sorry for your loss. My thoughts and prayers are with you and your family.
__________________
Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
Reply With Quote
  #11  
Old Sun Feb 15, 2015, 01:49 PM
Smarti54 Smarti54 is offline
Member
  
Join Date: Aug 2014
Location: Hattiesburg
Posts: 16
I am so sorry for your loss. You and your family are in my prayers.
__________________
Sunny age 36 diagnosed Jan 2014 with low grade MDS. Recurrent infections: GI, pyelonephritis and sepsis, then lower GI bleed. PoT syndrome January 2015. WBC 4, RBC 2.6, Hgb 9 Hct 27 platelets 62 MCV 107. Watch and wait. 11/15 BMB showed del(13)(q12-q14)
Reply With Quote
  #12  
Old Mon Feb 16, 2015, 12:50 PM
Birgitta-A Birgitta-A is offline
Member
  
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Amy
Dear Sue!
How sad that Amy has left you! Now she is happy and has peace.
Warm regards
Birgitta-A
Reply With Quote
  #13  
Old Mon Feb 16, 2015, 05:07 PM
Fana Fana is offline
Member
  
Join Date: Jul 2014
Posts: 29
I am so sorry for you loss.i have always been amazed with the positivity and the courage you had to fight this battle for Amy.you are a great mother....
__________________
Fana,mother of asad age 8 diagnosed SAA 2014, trying to decide between ATG or BMT..decided on BMT and finally did it
Reply With Quote
  #14  
Old Tue Feb 17, 2015, 01:51 AM
JordanN JordanN is offline
Member
  
Join Date: Nov 2014
Location: California
Posts: 59
Dear Sue,

I am so sorry for your loss! You and Amy fought so hard together and showed us all so much grace and inspiration! I hope you can find comfort in all the loving memories you, your friends, and family have of Amy's life! You are both in my thoughts and prayers!
Reply With Quote
  #15  
Old Tue Feb 17, 2015, 08:27 AM
SLB SLB is offline
Member
  
Join Date: Mar 2012
Location: Brisbane, Queensland, Australia
Posts: 130
So sorry for your loss xx
__________________
Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
Reply With Quote
  #16  
Old Wed Feb 18, 2015, 12:36 AM
joesmith joesmith is offline
Member
  
Join Date: Nov 2013
Location: New Jersey, USA
Posts: 31
Hello - I am so sorry for your loss. Amy is now in God's home and in peace.
Reply With Quote
  #17  
Old Wed Feb 18, 2015, 12:48 PM
Hopeful Hopeful is offline
Member
  
Join Date: Jan 2009
Location: California, USA
Posts: 769
Sue,

May you find comfort in her continued peaceful presence in your life. My thoughts are with you.
__________________
58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #18  
Old Thu Feb 19, 2015, 11:24 PM
amyangel amyangel is offline
Member
  
Join Date: Jun 2014
Location: Wisconsin
Posts: 64
Go Bless all of you !
Hi group of wonderful people !!
Thank you all for your kind words
I will continue to lift all you up in prayer ,
God has a plan for everyones life .
Keep on keeping on !! Fight for your health , but trust in Jesus !
Love Sue
__________________
Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
Reply With Quote
Reply

« Previous Thread | Next Thread »

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Myelo Dysplastic Syndrome Support Group Meeting: Central Georgia SASSI07855 Support Groups and Communities of Hope 3 Sun Apr 3, 2016 07:59 PM
San Francisco Bay Area California MDS Support Group Marrowforums Support Groups and Communities of Hope 10 Mon Feb 8, 2016 12:11 AM
Hershey Pennsylvania Community of Hope Support Group Marrowforums Support Groups and Communities of Hope 0 Sun Feb 8, 2015 01:17 PM
Vancouver Area Family Support Group Marrowforums Canada 0 Sat Aug 25, 2012 01:16 PM
Support Group for Chronic Graft versus Host Disease Marrowforums News and Events 0 Tue Aug 26, 2008 12:35 PM


All times are GMT -4. The time now is 07:16 AM.

Marrowforums - Archive - Privacy Policy - Top - Contact

Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org