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#1
Fri Mar 13, 2015, 09:31 PM
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Now Leukemia Free
That's the news from my doc at OHSU today, day +66.
Nov 2013 diagnosed with CMML, 2-3 years to live. Blasts were around 8%. Did 8 cycles of Decitibine. Nov 2014, went in for transplant but CMML had changed into AML and blasts of 45%. Did 28 day chemo conditioning 7+3. Two weeks at home. Then January 1 back to OHSU,chemo 5+2, and got my transplant on January 6th. I have had no sign of GVH but we'll see when they start with drawing the Tacrilimus which is the immune-suppressant. I am still tired and weary, have dry mouth but overall not bad at all. Write if you have any questions. JOHN
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John, 68, Portland, Or. Dx with CMML on 12/1/2013, 3 days before admission for SCT, blasts went to 23%, AML. Did 7+3 chemo regimen. The chemo worked and blasts are 1% and did BMT on 1/1/15.- 12/2/15, ongoing GVHD in eyes. Lung fungus and Bronchiolitis Obliterans (BO). 
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#2
Sat Mar 14, 2015, 01:34 AM
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John,
What great news! I was wondering how you were doing. I'm so glad to log into Marrowforums tonight and read your update. I'm sure you must be tired, you have been through a lot! May your new marrow continue to grow and heal you, and may you stay clear of the GvHD in the weeks and months ahead. I hear spring is in the air there in Portland (I have family near there). Heading to the West Coast with my son soon to climb a mountain at Big Sur. I hope you will be feeling progressively stronger as well, and be able to do the things you enjoy most. Kevin
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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#3
Sat Mar 14, 2015, 01:47 AM
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Great news John. It looks like you have been through a lot already. I wish you a very smooth and strong recovery from transplant.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#4
Sat Mar 14, 2015, 01:23 PM
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Very good John. Keep up the good work and be patient with your recovery.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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#5
Sat Mar 14, 2015, 09:51 PM
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Well done, John! Wonderful news. All the very best with the Tacrolimus withdrawal - I hope doesn't cause you any difficulties. Keep posting!
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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