Gabriel's Aplastic Anemia

[julia69]

My son Gabriel has had A.A. FOR 4 YEARS.He got sick when he just turned 6 and he 's now10.In 4 years we have had 3 treatments.
We've had A.T.G. Horse.We were in a protocol at The N.I.H.(Incredible Place) and A.T.G. Rabbit. Nothing breaks his glass ceiling of low 30,000 plts. 8 hmg.
a.n.c. 1000 retics 55.So we are clearly sick but not sick enough for a good strong treatment.I'm alway's searching for something.What a roller coaster.
Best Wishes,
Julia and Gabe

[Barbara2007]

Your and Gabriel are in my thoughts. I have aplastic anemia & I get weekly blood transfusions and twice weekly platlet transfusions-my counts are not holding and I go week to week. I don't know what treatment I will get next-I am just "on hold" until my marrow biopsy in May at NIH. Hang in there! Tell Gabriel I am so proud he is so brave-I have grand daughters his age-I bet the nurses love him! Barbara

[julia69]

I'm so sorry your count's won't behave.I really felt when we were at N.I.H. we were given a gift just by being there.I thought if any one could fix us it would be them.I do know that we all need to stay vocal about bone marrow failure ,my hospital act's like they know something but they are not even aware of the aplastic Anemia Foundation.Please stay strong and vocal.
All our best,
Julia and Gabriel