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MDS Myelodysplastic syndromes

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  #1  
Old Wed Aug 12, 2015, 07:17 PM
Faye R Faye R is offline
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cramps

I'm having terrible cramps in my hands have had them in my feet and legs before but not my hands, is this part of old age or MDS I wonder I have multi vitamins etc any suggestions
DX RCMD-RA on Vidaza had 11 months
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Old Thu Aug 13, 2015, 12:50 AM
Hopeful Hopeful is offline
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Hi Faye,

I would recommend getting your Magnesium checked.
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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Old Thu Aug 13, 2015, 07:52 PM
Faye R Faye R is offline
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Wink Cramps

Thanks I do take zinc and Mag will get my mag check out
DX RCMD-RA
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  #4  
Old Fri Aug 14, 2015, 06:02 AM
Cheryl C Cheryl C is offline
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Also make sure you are having enough salt in your diet. Even a pinch of salt can relieve cramps sometimes.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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Old Fri Aug 14, 2015, 09:05 AM
Marlene Marlene is offline
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Definitely get your electrolytes checked in addition to your magnesium. For some reason, magnesium is not included in a chem panel. An imbalance in electrolytes can impact joints and muscles. A good Celtic Sea or Himalayan Salt are good choices in that they provide many trace minerals that are missing from regular table salt.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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