Neupogen

[Chirley]

After many years of neutropenia I've just started Neupogen injections.

I was just wondering how long I could expect a response from each injection or does it vary from person to person?

I had 300mcg on Saturday and was critically neutropenic again today (Tuesday) and needed another injection. This means that to maintain a safe range I would require Neupogen injections every second day which I'm assuming will be ongoing forever.

Does this sound like the normal dose and rate? Is there any such thing as a "normal" dose and rate?

[Chirley]

Also wondering....while I get a little bone pain (not as much as with the copper infusions) I have gotten diarrhoea within a few hours of both injections. Is this coincidental or is this an expected side effect?

It's not a good side effect for someone trying to maintain/gain weight. I'm hoping it's just an opportunistic infection that will resolve.

[Cheryl C]

Can't help with Neupogen questions Chirley, but it's great to know that you're getting some help with the neutropenia. I hope it proves to be really effective.

[Chirley]

I've just been told the second injection hasn't worked yet, aiming for number three tonight. Hopefully there will be some improvement tomorrow.

[Chirley]

Okay, so I can answer my own questions now. I need injections every second day and yes, diarhoea is a side effect.