treatment with IVVG

[lfeinsmith]

I recently was told that vidaza was not effective
it was stopped .
i saw dr silverman who thought it shouldnt have been stopped and found that i had immune problem which led to Rx wth IvIg
It was then possible for me restart vidaza
counts have responded

[DanL]

I have read back through your history to try and build an understanding of the statement of vidaza doesn't work. Since my transplant, I have had some cellularity issues - possibly related to infections - such as pneumonia and cellulitis, maybe some related to GVHD. In August of 2014 I had some MDS relapse and treated it with Vidaza - we are now approaching a year of clean biopsies, but lower cellularity in the marrow - marrow seems to keep bouncing back, and we have added IVIG to strengthen the white blood cell production and effectiveness.

Long story short - it sounds like you may be on a similar path - use vidaza to help with the underlying problem, use IVIG to boost the WBC - that's why it is a medical practice - try and balance out the different risks and advantages, observe, make adjustments. It has served me well thus far even though it means a lot of change and uncertainty at times.

[Cheryl C]

DanL - I'm interested that you are saying that you are having IvIG to boost your WBC. I find that having IvIG makes absolutely no difference to my WBC. What it does do, though, is greatly reduce the incidence of infections and, of course, boost my serum globulins though not into normal range.