My mom was diagnosed today with MDS

[Maura R]

Riccd2001,

Mom was diagnosed as a "High Risk MDS patient...so not sure if she would be able to do the trial, but will question the doctor on Monday. Thanks for the input
Maura

[Maura R]

Well mom had her first platelet transfusion this past Tuesday. Levels were down to 12, so hoping that it will bring her levels up enough. Looking like her other numbers are dropping slowly also, probably will need shots next week.
Have to say the hardest thing through all of this, is trying to answer her questions. How does anyone grasp the fact that they only have 6 months to a year to live
Prayers are sent to everyone out there that has to deal with this awful disease...I am so thankful that I found this forum to talk and share with you all!!!





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Mom DX with MDS RAEB 2 with blasts @15 to 18%...just monitoring blood work and transfusions when needed

[alyasa]

Maura C

I hope and pray that goes well for you and your mom. Please stay positive for her sake, and be patient.

There is a lot of good advice on this forum so please spend some time here so that you can make it comfortable.

And please do not neglect yourself either! You have to take care too!

Peace and may the Almighty help your mom and her family.

[Maura R]

Alyasa,

Thank you so much for your post!!! It has been extremely hard, but we are getting through. We just had an appointment this past week and the platelet transfusions aren't working as wel as they should. The doctor seems to think she's starting to transition into leukemia, but we're staying positive and taking one week at a time for now.
I really appreciate all the support that I get from this forum. Thanks again and God Bless!