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#1
Thu Oct 22, 2015, 03:30 PM
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Life's winding road
Sorry I have been MIA from this forum! My dad has been through so much lately that I just haven't had the time to write. The good news is: HE'S IN REMISSION!!!! It finally took 6 cycles of Vidaza to be in complete remission which translates to a better cure/remission rate for him. They rechecked the registry and still no match so they will be using my brother as his donor as a haplo- transplant.
WOW such a change from the original plan but Dr. R said that the cord blood has a mortality rate of 30% and a haplo is around 10%. I like those odds better. Nov 11 is the date of his new birthday if everything goes well! His regimen will be Cytoxan//fludarabine pre-transplant then 2 days of Cytoxan and the addition of tacrolimus post-transplant to prevent GVHD. I will try to be with him as much as a can but my second child will be arriving around Dec. 15! talk about stress!!
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works. 
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#2
Thu Oct 22, 2015, 03:54 PM
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That is great news and comforting to hear. As you are well aware, we cling to anything and everything that is positive and heading in a good direction. Remission is great news!! Vidaza has worked well for so many people.
We wish you and your father the very best of outcomes.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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#3
Thu Oct 22, 2015, 04:00 PM
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Quote:
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
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#4
Fri Oct 23, 2015, 08:53 PM
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Wow! I was thinking about you the other day and wondering how your dad was doing. That is great news! I am so glad he had such a good outcome with the Vidaza! How is he feeling in general? Will be praying for your entire family and congrats on your upcoming arrival of your 2nd child! My son's birthday is Dec 14th!
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Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
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