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#1
Thu Nov 19, 2015, 03:18 AM
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Reticulin:MF 1 (WHO Classification)
I had my BMB results yesterday and I noted after the appointment that it stated I had developed MF 1 a secondary form of Myelofibrosis. I wasn't able to see my regular specialist so I 'm not sure if the specialist on call was unaware that this was an addition to my condition. I have emailed the specialist for clarification, but was wondering about others on this forum diagnosed with Myelofibrosis and was it reversed with treatment.
Cheers Rachael
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent. 
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#2
Wed Nov 25, 2015, 12:46 AM
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I was contacted by the specialist and it seems I don't have to be concerned till it gets to stages 2 & 3.
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Diagnosed MDS Del 5q October 2007, blood transfusions 2010, commenced Revlimid 2010. Transfusion independent.
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