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#1
Sat Nov 21, 2015, 01:15 PM
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i have a date!
I finally have a date to be admitted for my BMT. 12/3/2015. Transplant Day. 12/9/2015!. I am so nervous. But it's been a long road to get to this point. I am ready to get this process started and put all of this behind me. I know it's going to be a long road. But I am ready!
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far. 
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#2
Sat Nov 21, 2015, 03:39 PM
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We wish you the best. You have read many of our experiences. Be patient, flexible, get as much rest as possible, experiment with foods that work for you, drink plenty of fluids and ask any question that you might have.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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#3
Sat Nov 21, 2015, 06:17 PM
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Kamala, I will keep you in my prayers. You are well surrounded with a ton of people worldwide in this forum, always ready to support, give good advice, listen and most of all, understand what you're going through.... Take care, Annette
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#4
Sun Nov 22, 2015, 06:18 AM
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That's great news! I wish You all the best!
Be grateful, You're lucky. Very lucky.
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Diagnosed with AA in 2006; on CyA 2006-2014; treated with rATG in 2009; relapse in march 2011, high dose CyA + tapering - success (all values normal); low values in 2015; discontinued CyA, rATG+CyA December 2015; Working full time as of June 2016: CyA tapper to this day.
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#5
Mon Nov 23, 2015, 12:57 AM
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Go in with great confidence and trust in the process. I wish you strength throughout.
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#7
Sat Nov 28, 2015, 12:44 AM
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Praying the very best for you! We are a week behind you.
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Mickey - husband of Gail (62) - thymoma B1 stage 2b removed completely 12/2014- diagnosed VSAA March 2015; ATG & Promacta March 2015; minimal response. Unrelated BMT 12/16/2015; 10/10 donor 25 yr old female angel with same blood type.
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#8
Sat Nov 28, 2015, 06:35 PM
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Great news, Kamara! All the very best to you - I hope that Christmas is a wonderful happy time because you have come through with flying colours. Praying for you.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#9
Wed Dec 2, 2015, 11:02 AM
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Thank u everyone!!! I'm so nervous. It feels like my heart is in my throat!! But I am ready!!
MickeyAndGail I wish u well!!
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Kamara, 26, mother of 2.diagnosed AA July 2015, post BMT. currently on tacrolimus, acyclovir, diflucan, cipro. No sign of GVHD so far.
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#10
Wed Dec 2, 2015, 11:21 AM
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Kamara, we will be with you in thought. It is quite an experience, but doable. I had no pain at all during the process. The actual transplant seemed like a "non-event" and I slept through almost all of it. One of the hardest parts for me was drinking the two liters of fluids each day after the transplant. For me it was tomato soup that worked best. Remember to experiment to find out what works best for you. We wish you the best!!
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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