Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Feb 3, 2016, 12:06 PM
Ashleigh K. Ashleigh K. is offline
Member
 
Join Date: Jan 2016
Location: Birmingham UK
Posts: 21
Red face Awaiting 2nd Round of ATG

Hi again!!
Ok so, since my last appointment (26/01/16) I have found out that I only have Aplastic Anaemia and no signs of MDS, which is good!
Doc has opted for a 2nd round of ATG, I was due in hospital on Monday but the YPU doesnt have any beds ugh

Currently sporting a PICC Line, the procedure went well but I bled a lot (damn platelets x.x) Its a little bit of a nuisance and is making me concious of every twinge of pain I get in case something is wrong with it >.>

Should hopefully be admitted today maybe, even if it is late in the evening. really hope so anyway
__________________
Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
Reply With Quote
  #2  
Old Wed Feb 3, 2016, 05:34 PM
curlygirl curlygirl is offline
Member
 
Join Date: Jun 2013
Posts: 151
Good luck!
Reply With Quote
  #3  
Old Sun Feb 7, 2016, 01:11 PM
edithr edithr is offline
Member
 
Join Date: Feb 2011
Location: 30 mi West of Cleveland
Posts: 86
It's both funny and sad at the same time to be able to say, "yay it''s only Aplastic Anemia", but it really is a celebration.

Did they use horse the first time, and will they use horse again, or will they use rabbit? I thought there was some study about a repeat treatment and which was better.

Good luck to you!
__________________
Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
Reply With Quote
  #4  
Old Mon Feb 8, 2016, 05:19 AM
Ashleigh K. Ashleigh K. is offline
Member
 
Join Date: Jan 2016
Location: Birmingham UK
Posts: 21
Quote:
Originally Posted by edithr View Post
It's both funny and sad at the same time to be able to say, "yay it''s only Aplastic Anemia", but it really is a celebration.

Did they use horse the first time, and will they use horse again, or will they use rabbit? I thought there was some study about a repeat treatment and which was better.

Good luck to you!
Hah, thank you
I had rabbit the first time round so they are trying horse this time
__________________
Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
relapse, 2nd ATG, when do they look for BMT match JodyW AA 6 Mon Feb 11, 2013 10:29 PM
6 months after 2nd round ATG amberb AA 2 Fri Jul 6, 2012 02:49 PM
Husband starts 2nd ATG, cyclosporine Monday SherryM Drugs and Drug Treatments 10 Sun Nov 6, 2011 04:58 PM
Update - my husband 1 year after 2nd ATG paulaespada AA 3 Mon Jul 18, 2011 08:07 PM


All times are GMT -4. The time now is 07:01 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org