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#1
Tue Sep 13, 2016, 09:14 AM
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Good news!
Hi, just wanted to put some good news out here. As my signature says I had AML. I also had runx1 and trisomy 6. Post transplant the trisomy 6 went but runx1 remained in a few cells... my consultant was discussing DLI with me. Well as of my latest bone marrow biopsy in August BOTH are gone! And I am complete donor :-)
Yay for small miracles :-) Lisa
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old! 
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#2
Tue Sep 13, 2016, 12:39 PM
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That's fantastic, Lisa! Congratulations! Your family must be thrilled, and your baby doesn't know how lucky he or she is.
Your donor must have been a great match. What do you know about your donor? How's the cyclosporine reduction going?
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#3
Tue Sep 13, 2016, 11:29 PM
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Congratulations Lisa! May this success continue as you taper off the drugs.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#5
Wed Sep 14, 2016, 03:18 AM
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Thanks everyone :-) so greatful!
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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#6
Wed Sep 14, 2016, 07:47 AM
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That's great news Lisa! Stay strong and keep getting better.
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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