| Home Forums |
|
#1
Tue Dec 20, 2016, 09:46 PM
|
|||
|
|||
Paul S Passed away this morning
I have kept in touch with Paul S via this forum, e-mail, and phone. I spoke to Paul's wife this evening and I am sad to pass on that Paul passed away this morning. I don't know many details at this point but his wife said she would e-mail me in a day or two and asked me to post the e-mail. I will certainly do that. I am sure we will all miss Paul's posts and insight into MDS.
Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016. 
|
|
#2
Tue Dec 20, 2016, 10:27 PM
|
|||
|
|||
|
PaulS was a well-liked member of these forums. He cared about what happened to other patients, and we cared about him. He was always polite and helpful.
He had MDS since 2012, originally considered low-risk. What a shame that Vidaza and then a transplant couldn't put him in remission. I believe he was 57. I'm especially sad that Paul didn't get to go on the Colorado ski trip or California hike that he talked about. Those goals and life adventures are what we all strive for, and being sick focuses you even more on what you want to accomplish. My wife and I offer our condolences to Paul's family. Thank you Data for being Paul's friend and letting us know about losing him.
|
|
#3
Wed Dec 21, 2016, 01:25 AM
|
|||
|
|||
|
Shocked me. We lost a very good man who I think lived for us. I with my family offer our condolences to Paul's family.
Much has been done in the field of blood malignancies & BMT. But still to do too much. I think the world should give up to think about the dominating warheads. But we, with our Doctors, Medical Researchers, Geneticist should begin to think on war levels that is the BMT only way to cure MDS ? And if the BMT is the only way; then how this procedure be simplified to become successful & cheaper. How the mortality rate can be brought down during & after the BMT. We hear, read about the Gene Therapy, Targeted Therapy, Immuno Therapy etc. Why no one is emerging as the key treatment for MDS & other types of blood cancers ? I pray before the Allah for the goodness of all the people who are endeavoring to help all the patients like Paul and us. Thank Data, Neil and forum From, VAK
|
|
#4
Wed Dec 21, 2016, 12:12 PM
|
|||
|
|||
|
This is very sad news. We have discussed Paul often and have been hoping that no news was good news. I feel a deep loss for his family and all of us. ... he was one of us. He was so encouraging and that is something we all need. I'm sorry and I realize those words are not enough.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
|
|
#5
Wed Dec 21, 2016, 12:33 PM
|
|||
|
|||
|
So sad to hear the news.. awful disease that I hope will have a better cure rate in the very near future
__________________
Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
|
|
#6
Wed Dec 21, 2016, 06:34 PM
|
|||
|
|||
|
Obituary for Paul
I haven't heard back from Paul's wife but Paul's obituary can be seen here:
http://www.copelandfhnp.com/obituari...rg/#!/Obituary There is a option to leave a comment. Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
|
|
#7
Wed Dec 21, 2016, 07:21 PM
|
|||
|
|||
|
Thank you Data, and thank you for keeping in contact with Paul.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
|
|
#8
Thu Dec 22, 2016, 05:26 AM
|
|||
|
|||
|
I am very sad to hear of Paul's passing. Thank you for the update.
__________________
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
|
|
#9
Fri Dec 23, 2016, 01:30 AM
|
|||
|
|||
|
Very sad news. Sincere condolences to his family.
__________________
Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
|
|
#11
Sat Dec 24, 2016, 03:54 PM
|
|||
|
|||
|
From Paul's Wife
I received the following from Paul's wife:
It is with great sadness that I am writing to let you know that Paul passed away on December 20th. While the results of his 2nd bone marrow transplant were encouraging, he had an extreme reaction to a medication ( most likely an antibiotic), that led to a cascade of serious complications. Paul got a tremendous amount of information and support from this forum and cared deeply about its members. He will be missed by so many. My prayers are with you all for good health ahead. Ellen S. Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
|
|
#12
Sun Dec 25, 2016, 06:47 AM
|
|||
|
|||
|
Sad news. Paul was courageous and positive always. I will miss his posts. My deep sympathy to his wife and family.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
|
 |
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Good Morning America Anchor has MDS | Marrowforums | News and Events | 6 | Sat Sep 28, 2013 06:27 PM |
| My Mom Passed 28 Feb 13, 6:06 P.M. | mymomismyhero | MDS | 8 | Fri Mar 15, 2013 02:58 PM |
| My Mom Has Passed Away | yaka | MDS | 18 | Sat Dec 22, 2012 09:31 PM |
| Good Morning America | donna j. | News and Events | 0 | Tue Aug 28, 2012 08:07 PM |
| Paul Robin | leduck | Tell Your Story | 3 | Sat Aug 9, 2008 09:32 AM |
