2017 Pnh Patient Meetings

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2017 Pnh Patient Meetings

PNH Paroxysmal nocturnal hemoglobinuria

Tue May 2, 2017, 03:33 PM

GoodDay5150 GoodDay5150 is offline

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Join Date: Sep 2014

Location: Centennial, CO

Posts: 150

2017 Pnh Patient Meetings

https://rarediseases.org/for-patient...ting/pnh-2017/

Very informative and a great chance to meet others w/ PNH.

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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.

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