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PNH Paroxysmal nocturnal hemoglobinuria

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Old Tue May 2, 2017, 02:33 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
2017 Pnh Patient Meetings

https://rarediseases.org/for-patient...ting/pnh-2017/

Very informative and a great chance to meet others w/ PNH.
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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