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#51
Fri Jul 1, 2016, 04:14 AM
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Thank you so much dan for your reply and suggetions
yes she had her bone marrow biopsy done, no relapse ,no abnormal cells
but cellularity is insufficient as dr. Said chimerism is 100% Donor... no infection except irritation in eyes and sore throat! dr.'s have also tried stopping cyclosporin for a week but nothing has changed infact her platelets dropped from 39,000 To 29,000 and she's too has cataract in her left eye Last edited by Shikha tomar : Fri Jul 1, 2016 at 07:07 AM. 
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#52
Fri Jul 1, 2016, 04:33 AM
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hi dan
And yes i want to add one more thing, after transplant she has recovered the platelets and a month ago Her platelets were about 1,50,000.
she had transplant on 18-aug-2015 And within three months her platelets were around 2,00,000-3,00,000.
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#53
Sun May 7, 2017, 03:25 PM
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Greg, I've been thinking about you. Hoping that your transplant was successful. You have helped so many of us understand the disease better.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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#54
Sun May 7, 2017, 08:03 PM
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cathybee1,
I am sorry to have to tell you that Greg passed away in 2016. I agree that he was such a storehouse of knowledge, very caring, and a witty, happy warrior. May he rest in peace. Best wishes, Sally
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#55
Sun May 7, 2017, 10:42 PM
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Thank you for the news, Sally. When I saw how long it had been, I feared this. Greg personally helped us dig up some information when we were trying to understand this disease. I miss so many voices on this forum. Catherine.
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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