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#1
Wed Aug 30, 2017, 02:47 PM
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Article on ALL treatment for children
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K. 
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#2
Thu Aug 31, 2017, 09:35 AM
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A three-part documentary named "First in Human" was recently broadcast on the Discovery Channel, following four specific clinical trials at the National Institutes of Health.
One was the first human trial of CAR-T treatment for leukemia. TIME Magazine also had an article about this CAR-T treatment: Cancer's Newest Miracle Cure.
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#3
Thu Aug 31, 2017, 12:35 PM
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Big price tag on it.
Just read that it cost $475,000 for one dose. Hopefully they can find a way to the price down.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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#4
Thu Aug 31, 2017, 08:21 PM
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Quote:
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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#5
Fri Sep 1, 2017, 01:16 PM
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Quote:
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