| Home Forums |
|
|||||||
| Living with Illness Coping with disease, getting help, dealing with family, staying optimistic, quality of life, hospice care |
 |
|
|
Thread Tools | Search this Thread |
|
#1
Fri Nov 30, 2018, 09:00 AM
|
|||
|
|||
|
Our Journey's End
It is with sorrow that my amazing husband Patrick passed away on 17th November, after 3 years battling SAA which became MDS and subsequently AML... he fought until the very end never giving in to this sneaky disease.
Thank you to this forum for giving me the knowledge and insight to understand better the condition, to finding coping tools and to feel that there were others in the "same boat". I wish everyone hope and don't give up no matter what. Sincerely Barbara (WW)
__________________
Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine. 
|
|
#2
Fri Nov 30, 2018, 09:21 AM
|
|||
|
|||
|
I am so sorry to hear of Patrick's passing. I'm sure you were a great comfort to him over the years in which he battled this disease.
With sympathy....Marlene
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
|
|
#3
Fri Nov 30, 2018, 12:48 PM
|
|||
|
|||
|
My thoughts and prayers go out to you, Barbara. I am sorry for your loss.
__________________
58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
|
|
#4
Fri Nov 30, 2018, 03:27 PM
|
|||
|
|||
|
This is very sad news, Barbara. It's very generous of you to share the news with us in your time of loss.
You educated yourself, sought help wherever you could find it, and took care of Patrick. You're just as amazing as him. I wish that you and Patrick had had more years together.
__________________
Founder of Marrowforums and caregiver for my wife
|
|
#5
Fri Nov 30, 2018, 04:26 PM
|
|||
|
|||
|
Very Sorry
I am very sorry for your loss.
__________________
David M, reds/whites/plats slowly declining since 2000; hypo-cellular bone marrow; diagnosed Mild AA; low counts, but stable since 2009; watch and wait -- no treatments required to this point.
|
|
#7
Wed Dec 5, 2018, 08:48 AM
|
|||
|
|||
|
Thank You
Thanks to everyone for your kind messages above.
As a quote says...."All is not lost, only changed" Wishing everyone a Happy Christmas and I will light a candle for all those fellow carers and fighters wherever you are xxx
__________________
Barbara wife of Patrick age 60, Diagnosed SAA Jan 2016, 2 Treatments of ATG partial response, continuing with Cyclosporine.
|
|
| Thread Tools | Search this Thread |
|
|
Similar Threads
|
||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| MDS: Beginning to End | Carolyn's Husband Steve | MDS | 3 | Mon Dec 12, 2016 07:02 PM |
| What can I expect in end stage MDS? | Charbonnier | MDS | 6 | Sun Apr 17, 2016 02:54 AM |
| recipes and journeys with aa | anita | AA | 0 | Mon Aug 19, 2013 05:07 PM |
| BMT end of aug beg Sept | Anne Yeomans | MDS | 13 | Mon Sep 10, 2012 01:00 PM |
| end stage? | bebop | MDS | 4 | Thu Oct 28, 2010 06:20 PM |
