Vidaza Survey - How Long?

[AliceKay1]

That's wonderful news, Thomas. Glad to hear it!

[Sue&Dave]

Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.

[AliceKay1]

Originally Posted by Thomas Hawkinson

I have been on Vidaza for 14 cycles. Monday, April 23rd will be the beginning of my 15th round. I have had excellent results, to the point that the 7 day regimen is now down to 5 days each cycle. So far, no transfusions or other interventions. Side effects have been minimal.

Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice

[Thomas Hawkinson]

Originally Posted by Sue&Dave

Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.

Dr. List, my oncologist at Moffitt, suggested the change this past January. I just finished my 16 cycle and all is good so far. It has made my life a little easier and allows for me to have a little more freedom!

[Thomas Hawkinson]

Originally Posted by AliceKay1

Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice

I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.

[AliceKay1]

Originally Posted by Thomas Hawkinson

I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.

Thanks for answering my question, Thomas. It's great to hear you're doing well on only five days of vidaza.

I only wondered about your age because I'm eighty, and so many people on this forum are much younger. The disease may affect us differently at different ages, e.g., no transplants for people my age.

And thank you for your service.

[edwardbear]

Needed Blood Transfusion during first 3 Cycles, but not since. Specialist has been experimenting with increased time between Cycles - 5 weeks & then 6, but with Blood counts going lower.