Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #26  
Old Sat Apr 21, 2018, 12:51 AM
AliceKay1 AliceKay1 is offline
Member
 
Join Date: Sep 2017
Location: Walnut Creek CA USA
Posts: 42
Good news, Thomas!

That's wonderful news, Thomas. Glad to hear it!
__________________
AliceKay1, 80 years old, dx MDS 2017, being treated with Vidaza
Reply With Quote
  #27  
Old Mon Apr 23, 2018, 06:44 AM
Sue&Dave Sue&Dave is offline
Member
 
Join Date: Nov 2016
Location: New York
Posts: 50
Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.
Reply With Quote
  #28  
Old Tue Apr 24, 2018, 01:13 AM
AliceKay1 AliceKay1 is offline
Member
 
Join Date: Sep 2017
Location: Walnut Creek CA USA
Posts: 42
Age?

Quote:
Originally Posted by Thomas Hawkinson View Post
I have been on Vidaza for 14 cycles. Monday, April 23rd will be the beginning of my 15th round. I have had excellent results, to the point that the 7 day regimen is now down to 5 days each cycle. So far, no transfusions or other interventions. Side effects have been minimal.
Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice
__________________
AliceKay1, 80 years old, dx MDS 2017, being treated with Vidaza
Reply With Quote
  #29  
Old Wed May 30, 2018, 03:28 PM
Thomas Hawkinson Thomas Hawkinson is offline
Member
 
Join Date: Mar 2015
Location: Tampa, Florida
Posts: 9
Quote:
Originally Posted by Sue&Dave View Post
Hi Thomas - it's nice to hear you have had the same positive effects as my husband on Vidaza. I am curious about reducing the treatment down to 5 days. When was this decision made? Did it take some getting used to? I'm always looking for ways to minimize the intrusion this disease has on our lives.
Dr. List, my oncologist at Moffitt, suggested the change this past January. I just finished my 16 cycle and all is good so far. It has made my life a little easier and allows for me to have a little more freedom!
Reply With Quote
  #30  
Old Wed May 30, 2018, 03:42 PM
Thomas Hawkinson Thomas Hawkinson is offline
Member
 
Join Date: Mar 2015
Location: Tampa, Florida
Posts: 9
Quote:
Originally Posted by AliceKay1 View Post
Thomas, would you mind telling us a little about yourself? Your age, for instance?
Alice
I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.
Reply With Quote
  #31  
Old Thu May 31, 2018, 01:59 AM
AliceKay1 AliceKay1 is offline
Member
 
Join Date: Sep 2017
Location: Walnut Creek CA USA
Posts: 42
Thank you

Quote:
Originally Posted by Thomas Hawkinson View Post
I am presently age 70. A former Vietnam veteran with exposure to Agent Orange back in the late 60s.
Thanks for answering my question, Thomas. It's great to hear you're doing well on only five days of vidaza.

I only wondered about your age because I'm eighty, and so many people on this forum are much younger. The disease may affect us differently at different ages, e.g., no transplants for people my age.

And thank you for your service.
__________________
AliceKay1, 80 years old, dx MDS 2017, being treated with Vidaza
Reply With Quote
  #32  
Old Sat Aug 29, 2020, 06:48 PM
edwardbear edwardbear is offline
Member
 
Join Date: Dec 2015
Location: Auckland, New Zealand
Posts: 4
Now on Cycle 72

Needed Blood Transfusion during first 3 Cycles, but not since. Specialist has been experimenting with increased time between Cycles - 5 weeks & then 6, but with Blood counts going lower.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Term Side Effects of Vidaza Jill2008 Drugs and Drug Treatments 6 Sun Jun 1, 2014 08:35 PM
Vidaza: How Long Can You Live? MDS Diagnosis sobrien MDS 2 Wed Aug 14, 2013 03:44 PM
I am not sure how long Earl will continue Vidaza Therapy milliken2 MDS 27 Tue Jan 8, 2013 06:50 PM
When to stop Vidaza? Paolo D. Drugs and Drug Treatments 5 Sun Jun 26, 2011 02:15 AM
Long Term vidaza use?? Beryl Drugs and Drug Treatments 4 Tue Nov 3, 2009 09:27 AM


All times are GMT -4. The time now is 07:27 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org