Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Feb 25, 2021, 09:20 AM
rebekahtmiller rebekahtmiller is offline
Member
 
Join Date: Oct 2014
Location: keene, nh
Posts: 3
possible mds

Hello Everyone-
I have some questions. I started being followed by a hemotologist 7 years ago, for low blood counts (wbc and platelets). Had a full work up, and doctor thought it was early stages of MDS.
BMB done at the time said. MILDLY HYPOCELLULAR BONE MARROW (55-60%) WITH TRILINEAGE
HEMATOPOIESIS.
B. MILD DYSERYTHROPOIESIS WITH OCCASIONAL NORMOBLASTS EXHIBITING
MEGALOBLASTOID CHANGE AND NUCLEAR IRREGULARITY.
C. SCATTERED RINGED SIDEROBLASTS ARE PRESENT ON THE IRON STAIN (<15% OF
CELLS).
D. Mild Dysmegakarypoisis
Flow Cytometry said There is a subset of T Cells that are positive for for CD3,CD5(dim), CD16, CD56, CD94 T cell large granular lymphocytes

My question is, my WBC has been steadily declining, and i have moved, so i am wondering if i should request another BMB?
Thanks for your thoughts
Reply With Quote
  #2  
Old Thu Feb 25, 2021, 06:30 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Quote:
Originally Posted by rebekahtmiller View Post
My question is, my WBC has been steadily declining, and i have moved, so i am wondering if i should request another BMB?
I'm sorry your white could is dropping. Are your other counts holding up OK?

In answer to your question, it's my opinion that you should find a hematologist with MDS experience, make an appointment, and let them advise you about biopsies or other tests.

You could phone the AAMDSIF for help in locating experts in your area. For example, if Boston isn't too far away, you can find experts at Massachusetts General Hospital or Dana Farber Cancer Institute. You could also ask your previous hematologist for a referral.
__________________
Founder of Marrowforums and caregiver for my wife
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 03:51 PM
New Tool: MDS Classification Marrowforums Site Announcements 7 Tue Jan 4, 2011 05:12 AM
Battle with MDS - A successful story informer Alternative Treatments 4 Sat May 22, 2010 08:26 AM


All times are GMT -4. The time now is 11:45 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org