Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Sun Feb 28, 2021, 11:59 PM
DaughterL DaughterL is offline
Member
 
Join Date: Feb 2021
Location: Philadelphia PA
Posts: 1
AA and COVID Vaccine

Hello all,

My dad was diagnosed with SAA in early 2018.

Since that time, he has gone through two rounds of ATG (horse, than rabbit) - one in 2018 and one in 2019, both with moderate success following treatment.

Over the past three years we have gone through periods where he has been doing well and others when he is not doing so well. A difficult family has not helped (stress), as well as him not always taking his cyclosporine medication properly (particularly at night when he has trouble sleeping).

Over the past two months his blood counts have been dropping, with particularly low platelets. He also has type 2 diabetes, although recent dietary adjustments have really helped get that in check.

His doctors do not want him to take the COVID vaccine because of his low blood counts.

I am interested to know whether any AA patients have gotten the vaccine and how it went, noting the severity of your disease.

Appreciate the feedback.
Reply With Quote
  #2  
Old Mon Mar 1, 2021, 10:44 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,412
John just got his first shot this past Friday and so far, is doing well. Other than a sore arm for two days and a bit tired the first day. This April will be 19 years since he was diagnosed. He is not on any immunosuppressive medicines and his white count has remained stable in the normal range. His red cells and platelet remain below normal but in a very livable range. So he's in a partial stable remission and age is his only risk factor for getting a severe bout of COVID.

There is always a risk that the vaccine could effect his counts but I'm sure the virus could have more of an impact on them as well as other issues.

It would be helpful to understand what their concerns are regarding his low counts. For example: Are his platelets so low that he's at risk for bleeding? Is his white count so low that they think he wouldn't have a response? Or are they concerned that it will trigger a relapse? Or are they planning to start a new treatment for his falling counts? They need to be more specific than "just low counts"

You may want to take a look at this to see if it helps:

https://www.hematology.org/covid-19/...plastic-anemia
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #3  
Old Sat Mar 27, 2021, 01:08 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 769
There is an excellent webinar that was recently sponsored by AAMDSIF. It discusses the latest recommendations for bone marrow failure patients concerning the COVID vaccine.

https://www.aamds.org/webinar/covid-...b-8b543d20fc13
__________________
58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Should I get the covid vaccine? summerdrake Transplants 3 Wed Jan 20, 2021 10:40 AM
Moderate AA and COVID-19 David M AA 10 Tue Nov 24, 2020 11:32 AM


All times are GMT -4. The time now is 09:32 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org