T-Cell LGL Leukemia: Trying to connect with others

[triumphe64]

Originally Posted by VINCENT

thanks triumph64, i can only imagine why you use that handle

It's a college thing. Did they let you join?

[VINCENT]

Hello triumph64,

I am in and so far I have gained a wealth of information that would normally have taken hours or days to find.
Thank you for checking in and hope all is well with you!

[LCarrington]

Is this the correct forum to discuss LGLL? I have been in one Facebook group but one of the admins has a personal vendetta against me. Looking for a friendlier place for support with this baffling, scary, and largely unknown variety of leukemia. Thank you. Lewis

[Neil Cuadra]

Originally Posted by LCarrington

Is this the correct forum to discuss LGLL? I have been in one Facebook group but one of the admins has a personal vendetta against me. Looking for a friendlier place for support with this baffling, scary, and largely unknown variety of leukemia. Thank you. Lewis

Welcome, LCarrington.

You're welcome to discuss LGLL with anyone here at Marrowforums. Users here can choose to be anonymous if they want, and you won't find any vendettas, just discussions about diagnosis, treatment, and living with these diseases.

Whether you are facing T-cell or NK-cell LGLL, you might also look for information from the Leukemia & Lymphoma Society. In addition to medical information, they offer local support groups all over the country.

The Colorado Springs Family Support Group meets monthly on the third Tuesday of each month, at 6pm Mountain Time, so the next meeting will be on January 18, 2022. The people who participate there may be facing many different forms of leukemia, so there may or may not be a discussion involving LGLL. The Leukemia & Lymphoma Society may be able to tell you about any LGLL-specific resources they have.

[triumphe64]

Originally Posted by LCarrington

Is this the correct forum to discuss LGLL? I have been in one Facebook group but one of the admins has a personal vendetta against me. Looking for a friendlier place for support with this baffling, scary, and largely unknown variety of leukemia. Thank you. Lewis

I am familiar with a LGLL FB group and with the admins. I know that one lady is just very careful as to who she lets in because they have been burned in the past. I'm sure they have questions to answer to join. Do you know why she has a vendetta?