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  #1  
Old Tue May 10, 2022, 03:46 AM
Scooter Scooter is offline
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Location: Adelaide, South Australia
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Severe aching feet

Hi
Had my AA treatment about 4 years ago. One of the long term medications that i was on caused severe swelling in my feet ( not sure which medication ). I discussed with my specialist and they showed no concern. Anyway, 4 years on the swelling has well and truly gone but the aching in my feet has continually worsened to the point where is causing me concern. My specialist thinks it not related. Is there anybody else who has this problem? or is it just me

Regards Paul
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  #2  
Old Tue May 10, 2022, 09:53 AM
Marlene Marlene is offline
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My husband had nerve damage from treatment. It took quite a while for it to improve but it did. It's not 100% resolved but close enough. They really had no solutions to help resolve it. Only medication for pain. We ended up doing lots around nutrition and alternative therapies.

What kind of foot pain are you having?
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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  #3  
Old Wed May 11, 2022, 02:35 AM
Scooter Scooter is offline
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thanks marlene
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Old Wed May 11, 2022, 04:40 AM
Scooter Scooter is offline
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foot pain

Just a constant ache in all the foot muscles
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  #5  
Old Sun May 15, 2022, 03:13 PM
Marlene Marlene is offline
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Sorry it's taken so long for me to respond. It may or may not be related to your treatment. In any case it needs to be addressed. I hope you will pursue it and see if you can find a reason for the pain. It can be related to circulation issues or even compression issues on the nerves from the swelling. John too had lots of swelling in his legs and feet. It's never fully resolved and they were never too interested in pursuing it. There are many things that can cause foot pain. It can be as simple as something structural where a chiropractor or osteopath can help. Foot and knee pain can come from a mis-aligned back. Nutritional issues can also contribute to it. It's complex and should not be ignored especially if it's progressing. Resolving it involved a lot of trial and error on our part. Somethings helped while others had no effect.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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