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MDS Myelodysplastic syndromes

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  #1  
Old Sun Apr 5, 2009, 04:28 AM
alicat4790 alicat4790 is offline
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Join Date: Aug 2008
Posts: 13
Would Like to Talk With MDS Patients!

I am 47 and I have MDS. I am looking for others who wish to talk about their MDS experience. May I call you, and if so, please leave me your phone number. Or contact me at: alicat0226@hotmail.com.

Thanks you,

Caroline
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  #2  
Old Sun Apr 5, 2009, 09:25 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Caroline,

Welcome to the group. I am glad you found us. Can you tell us a little about you and your MDS? Do you know what type you have? Do you have excess blasts? Chromosome abnormalities? Where are you being treated?

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #3  
Old Tue Apr 14, 2009, 05:56 AM
towncarlady towncarlady is offline
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Join Date: Nov 2008
Location: Gardendale, Alabama, USA
Posts: 36
MDS Patient

You may contact me at: leonettewalls@hughes.net
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