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#276
Tue Aug 12, 2014, 11:31 PM
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So happy for you!!! God bless!!!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium. 10/10 MUD 10/10/13 Now no PNH or AA. Mixed Chimerisim 
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#277
Wed Aug 13, 2014, 06:59 PM
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D38 since chemo
Counts finally took off after two days at home... (Parabolic)
WBC's rose to 2.2 (1.3 Monday) ANC hit 1.2 (0.5 Monday) PLT's rose to 108 (100 Monday) HGB up to 9.7 (8.4 Monday with no Transfusions) Had my BMA/BMB today, changed pick-line dressing, will go back next Wednesday for follow up... Feeling extremely well, happy to be home... All the Best, and may God Bless us ALL!!!
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10  ; 5.5% blasts down to 3%, now 1% (post BMT)
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#279
Thu Aug 14, 2014, 08:03 AM
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Well done! That's great news.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#280
Thu Aug 21, 2014, 12:23 PM
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Had my CBC taken this past Tuesday, and met with the Leukemia Dr.
Good news: WBC's rose to 4.0 ANC hit 2.7 PLT's at 101 HGB steady at 9.6 Not so good news: Got my BMA/BMB prelim results, and not great, came back at 15% up from 10% (not terrible), but that means I'm starting a 2nd round of Chemo... If all goes well this round, then my 2nd Transplant will now be in October... Have to do everything I can to get it right this time, so was expecting that I might need a 2nd round (like I did last year)... All the best, and May God Bless!!!
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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#281
Thu Aug 21, 2014, 04:20 PM
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Hang in there Dave. From what I hear and read, two rounds is pretty common when fighting AML prior to transplant. I am sending good thoughts your way daily and know that you will persevere. It is good to see that your counts are bouncing back.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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#282
Fri Aug 22, 2014, 06:54 AM
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A bump in the road for you too, Whiz, but as usual you are taking it in your stride. God bless you too.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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#283
Tue Sep 16, 2014, 02:20 PM
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D+22 since start of 2nd round of chemo
WBC's rose to 0.4 (0.2 Yesterday) ANC still zero
PLT's at 11 (Will get PLT's today) HGB at 8.1 (7.1 Yesterday so I got a RBC Transfusion) Had a fever all last week, as High as 39.4c; the fever would break, and come back, ended up being a bacterial blood infection (something Pneumonia) one of the mildest strains, thank the Lord!!! Feeling better, appetite is actually building, things are looking up for going home later next week / following week... Will have BMB/BMA outpatient after that... Based on good result, looking at 10/24/2014 admission for second SCT/BMT... D+0 would be 10/31/2014 exactly the same day as my 1st transplant... Crazy.... All the Best!!! And may God Bless!!!
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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#284
Tue Sep 16, 2014, 05:16 PM
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Glad you're feeling better
Good to hear from you. Hope all goes as planned.
It would be kinda coincidental if it falls out on Halloween again, but stranger things have happened....Glad you're feeling better and hope you get to go home next week. Sooner the better - Take Care!!
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#285
Wed Sep 17, 2014, 07:53 AM
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Great to hear from you.. Glad things are looking up. Good luck with your bmb... Second induction did the job for me, so here's hoping
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Sharnie, 37yo, dx Mar 2012 RAEB II 13% blasts. 8 months of Vidaza. Transformed to AML in Nov 2012, induction chemo, no remission. 2nd lot of chemo, remission achieved. SCT with 8/10 match, Mar 2013.
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