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#26
Tue Dec 13, 2011, 04:23 PM
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atg response
Well, this is the 10th month after ATG and guess what.....no transfusions now for 5 weeks, so counts appear to be climbing.....feel great, no more pounding in the ears, no more breathlessness when walking around - not 100% because if I push it then heart does beat faster, but I must be incredibly unfit also....will find out next Monday if there is another climb....but posting really to say, never give up hope....I firmly believe that like child birth AA is different for every single one of us...and...we all respond differently. Fingers crossed to get back to "normal" counts xxxx god bless all
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#27
Tue Dec 13, 2011, 10:51 PM
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Great news! I agree - never give up hope or base your predictions completely on the experiences of others. These diseases are very individual in manifestation and response to treatment.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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#28
Wed Dec 14, 2011, 08:18 AM
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Really great news Karenish!!!!
I am happy that now you are transfusion independent and your counts are up....
__________________
Kavya; my daughter age 4.5; diagnosed AA 2010; treated with ATG in December 2010; currently on cyclosporine; 6 month over for ATg but still transfusion dependent;
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