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MDS Myelodysplastic syndromes

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  #26  
Old Fri Apr 18, 2014, 12:44 AM
DanL DanL is offline
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I am truly sorry for your loss.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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  #27  
Old Fri Apr 18, 2014, 04:08 AM
Birgitta-A Birgitta-A is offline
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MDS
Dear mdsSucks,
How sad that your father lost his fight. Now he is resting in peace.
Warm regards
Birgitta-A
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  #28  
Old Fri Apr 18, 2014, 07:24 AM
Cheryl C Cheryl C is offline
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Location: Lake Macquarie, Australia
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Very sad to hear of your dad's passing. You guys did your best for him. Praying for you and your family.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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  #29  
Old Fri Apr 18, 2014, 09:01 AM
Bhutt Bhutt is offline
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So sorry to hear. Our hearts and prayers go out to you and your family.

Blair
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  #30  
Old Fri Apr 18, 2014, 09:12 AM
Whizbang Whizbang is offline
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Join Date: Aug 2013
Location: Central NJ
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Blessings to you and your Family, in this difficult time...

My prayers go out to you...
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Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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  #31  
Old Fri Apr 18, 2014, 01:53 PM
Neil Cuadra Neil Cuadra is offline
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mdsSUCKS,

I'm very sorry that you've lost your dad and that your family had to go through so much over the last 2 years. I hope your predominant memories will be of the happier times you and your dad had together, before he became ill.
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  #32  
Old Fri May 9, 2014, 03:19 PM
mdsSUCKS mdsSUCKS is offline
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Thank You
Thank you for the kind words everyone. Our family is hanging in there, I miss my dad so very much but happy he isnt in any more pain.

Good Lock and GOD BLESS to all of you.
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  #33  
Old Fri May 9, 2014, 11:16 PM
bebop bebop is offline
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I am so so sorry for your loss. my thoughts and prayers are with you and yours.
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