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#26
Sun Feb 10, 2013, 10:41 PM
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Beth - My deepest sympathy for your very sad loss. May you experience the comfort which comes from knowing that you did your very best for Earl. Your attitude throughout has been an inspiration to all of us who are facing the unknown. My gift for your encouragement is 1 Thessalonians 4:16-18.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood. 
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#27
Sun Feb 10, 2013, 11:11 PM
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Dear Beth, stay strong with the knowledge that your dear Earl is now resting peacefully and is no longer suffering.
I have watched your posts and the strength, kindness and support you have offered to Earl and all on of us here on this forum as we face the fear of these unknown diseases is inspirational. Kind thoughts to you and yours at this most difficult time. Sandi
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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#28
Sat Feb 16, 2013, 04:42 PM
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Earl's Passing
Beth,
I am so sorry for your loss. May Earl rest in God's eternal peace. Please know that my thoughts and prayers are with you Florida Gal
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79/F dx MDS-RA 07/07, dx RCMD 03/09 , dx RAEB-1 04/13 /,failed VIDAZA 4/13, dx RAEB-2 06/19, RX Aranesp
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#29
Sun Feb 17, 2013, 08:59 PM
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Beth, I have read how much you loved Earl and what a strong advocate you were for his treatment. May everyone have an advocate as passionate as you have been. Going forward will be difficult but you have shown you have the grit to do it. My sympathy to you in your loss.
Sue
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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#30
Mon Feb 18, 2013, 07:04 PM
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In our thoughts
Sending prayers to keep you strong. Such a loss and so hard for the family. You both battled hard to the end.
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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#31
Tue Feb 19, 2013, 11:25 PM
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Thanks for the words of encouragement
Everyone;
Thank you all so much for the love, prayers an encouragment that you have extended to both Earl and myself throughout this entire ordeal. I want to share with you a poem that I wrote after driving home from Tampa that night. It is titled: F I N A L I T Y Nothing more needs said - but thanks again dear friends.I always knew the time would come when we would say 'goodbye'. It came so soon, my heart is sad, it seems we just said 'Hi'. The times we shared now have a place so special in my heart. The memories, the laughs and tears all from the very start. I care so very much for you, the feelings just won't end. My love, my life, my husband my dearest and best friend. I will Love You Forever, Beth Beth
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Beth - R.N., B.S.N and wife of recently diagnosed husband who has been classified at stage 4 MDS  . and I can't help the one I love the most.
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#32
Wed Feb 20, 2013, 07:28 AM
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Poem
Beth, what a beautiful poem. I had tears in my eyes when I read it, tears of sadness and happiness. Thank you for sharing this lovely poem with us.
Lots of love, prayers and hugs.
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Dean,age 76, dx MDS, RAEB-2, 17% blasts, June 2012 - May 2013 - Dacogen with Neupogen and transfusions as needed. End of May 2013 Dacogen stopped working. BMB July 2013 shows RAEB-2 and severe Myelofibrosis. Passed away September 30, 2013
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#33
Wed Feb 20, 2013, 09:20 PM
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Thanks for Sharing
A lovely tribute to Earl. Thanks for sharing it with the forum.
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Joan, wife of Don, 80, diagnosed MDS-RCMD 2006, on 300 mg Aranesp every 2 weeks. Only RBC affected by MDS.
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#35
Thu Feb 21, 2013, 01:58 PM
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Beth--I don't log in much but you and Earl were on my mind last night and I'm so sorry to find this news today. You have my sincere sympathy. May you find strength in the love and support of family and friends and that fond memories lift you up in this time of sorrow.
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